Kaftrio and pseudomonas Hello everyone. I hope all are keeping well. My son started kaftrio a month and a half ago today, he never had any 'purge' as they call it.... Where you...Reactions 0 reactions Comments1 repliesDaily Treatment
Lifetime of Hill Rom VestHi everyone, I am new at this forum and could not find any topic about Hill Rom Vest 105 system which is a crucial part of our daily care. What...Reactions 0 reactions Comments3 repliesDaily Treatment
sodium chloride and acetlysisteine back ordered and unavailable I have been out of two of my most needed nebulized medicines. Apparently there is a shortage of both of these and getting them from my pharmacy has been a...Reactions 0 reactions Comments1 repliesDaily Treatment
CF TreatmentWhich treatments are you (or your child) taking on a day to day basis? (Remember, this is a place to talk about personal experiences, but we ask that you do...Reactions 0 reactions Comments2 repliesDaily Treatment
Getting sickMy son has cf and every time the doctors take him off antibiotics he winds up back in the hospital. Has this happened to anyone else? The doctors don’t know...Reactions 0 reactions Comments7 repliesCaregivingDaily Treatment
catheter dressing recommendationHi all! As a caregiver, I had to do a lot of trial and error for medical supplies, especially catheter dressings. I came across this medical company based in Korea...Reactions 0 reactions Comments1 repliesCaregivingDaily TreatmentPICC Lines
CF & COVID-19Now that more people have been vaccinated, how are you feeling about returning to a more normal lifestyle? Does anyone feel ready to return back to their life before COVID? ...Reactions 0 reactions Comments3 repliesDaily Treatment
The Challenges of Managing CFManaging cystic fibrosis can often require hours of treatment each day, hospital visits, etc. It's extremely challenging to manage CF, even when you're feeling well. Share any tips you have...Reactions 0 reactions Comments0 repliesDaily TreatmentCoping