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Read conversations, start a discussion, and connect with others about cystic fibrosis.

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Staying hydrated with CF

The weather is heating up! How do you make sure that you or your little CFer avoid dehydration while still having fun? Share your tips below!...

FeaturedActive 6 days ago

Connecting with Other CFers

Let's talk about those CF connections! Do you feel like it is easier to talk about your disease with others that also have CF? How do you find others with...

Active 3 days ago

If it wasn't for bad luck I'd have no luck at all

Cystic fibrosis is one of the most horrible illnesses a person can get. I have seen what it does and I will never forget it. My daughter has it she's...

Active 7 days ago

Newbie´s questions

Hello good day,im newbie! Do you have pain in your neck or near your neck? Which doctor diagnosed the disease? Did your pancreas come out good or bad on the...

Seeking perspectives on genetic engineering and cystic fibrosis

Good evening, I hope it’s okay to post this here—apologies if not! I’m a second-year college student working on a research project (EPQ) about public perceptions and ethical concerns surrounding...

Medicine in Israel

Does anyone know if Pulmozyme and TOBI are available for sale in Israel? Any idea of cost since will be paying out of pocket....

Benefits PIP

Whilst having CF is there only two benefits you can claim i.e p.i.p and ESA or is there other things and grants out there anyone knows about that could help...

Please help I need insurance advice

Hello, I just got the saddening call yesterday that my transplant clinic is dropping me because my insurance was no longer accepting their clinic. I was devastated to say the...

How many of you do IV antibiotics at home?

It’s a subject that differs with a lot of patients especially those living in the states when it comes to insurance (I’m in the UK) but I’m able to do...

Best centers for Atypical Adult Onset Diagnosis

I am a 50 year old with gradual symptoms of CF and a genetic sequencing test showing 2 extremely rare genes that could be indicative of CF, but requires further...

CF In the elderly

I am newly diagnosed at 69 years old. I’m angry and happy and so emotional. Anyone my age with CF?...

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