FeaturedStaying hydrated with CFThe weather is heating up! How do you make sure that you or your little CFer avoid dehydration while still having fun? Share your tips below!...Reactions0reactionsComments3 repliesWeather
FeaturedConnecting with Other CFersLet's talk about those CF connections! Do you feel like it is easier to talk about your disease with others that also have CF? How do you find others with...Reactions0reactionsComments27 replies
Active yesterdaySeeking Urgent Help and Guidance for My BrotherMy younger brother, Nikunj, who is 18 years old, has been battling cystic fibrosis (CF) since he was diagnosed at the age of 9. His genetic mutation is R560S. Over...Reactions0reactionsComments0 repliesLung TransplantTips & AdviceDaily Treatment
Active yesterdayRant Sooo... I'm curious 🤔 how many of you cfers have cats ?? And how did you manage that with the litter tray then smell the hair and cat dander ??...Reactions0reactionsComments1 repliesCopingDepressionAwareness
Active yesterdayChit chat Well it's 2025 & it's been a long time since I were last on here and I've gone thru so much in the time that I've had a break from...Reactions0reactionsComments1 replies
Active 4 days agoIf it wasn't for bad luck I'd have no luck at allCystic fibrosis is one of the most horrible illnesses a person can get. I have seen what it does and I will never forget it. My daughter has it she's...Reactions0reactionsComments25 repliesCopingCaregiving
Active 5 days agoBenefits PIP Whilst having CF is there only two benefits you can claim i.e p.i.p and ESA or is there other things and grants out there anyone knows about that could help...Reactions0reactionsComments1 repliesCostCoping
Newbie´s questionsHello good day,im newbie! Do you have pain in your neck or near your neck? Which doctor diagnosed the disease? Did your pancreas come out good or bad on the...Reactions0reactionsComments6 repliesDiagnosis
Seeking perspectives on genetic engineering and cystic fibrosisGood evening, I hope it’s okay to post this here—apologies if not! I’m a second-year college student working on a research project (EPQ) about public perceptions and ethical concerns surrounding...Reactions0reactionsComments0 replies
Medicine in IsraelDoes anyone know if Pulmozyme and TOBI are available for sale in Israel? Any idea of cost since will be paying out of pocket....Reactions0reactionsComments0 repliesCost
Please help I need insurance adviceHello, I just got the saddening call yesterday that my transplant clinic is dropping me because my insurance was no longer accepting their clinic. I was devastated to say the...Reactions0reactionsComments2 repliesCostLung TransplantInsurance & Disability