Forums

Read conversations, start a discussion, and connect with others about cystic fibrosis.

Trikafta (Kaftrio) causing Bad Memory Loss?

Hi, I have been on Trikafta from June 2021. My lung function has went up 20%, and I generally feel a lot...

Support

I need to talk to someone badly, i was out with my support worker it was freezing cold i forgot to put...

EXPLORING CYSTIC FIBROSIS: GASTROINTESTINAL CHALLENGES, MENTAL HEALTH IMPACTS, AND INNOVATIVE TREATMENTS"

Cystic fibrosis (CF) is a hereditary rather inheritable mess and disturbance that exert influence on several organs. First and foremost the lungs...

Hospital admissions & fed up

Is there any coping strategies people use whilst in a state of depression due to our CF bringing us down I mean...

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Being a Parent with CF

Managing a chronic illness can be a lot of work, but adding children to the mix makes it even harder. What is...

I have CF and am pregnant

Let’s share our experiences that can be uniquely nuanced because of managing CF and also new symptoms and changes with pregnancy....

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Staying hydrated with CF

The weather is heating up! How do you make sure that you or your little CFer avoid dehydration while still having fun?...

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Does anyone remember Sammi's Story by Philippa Manning, 1993!?

I am a final year Sociology student with Cystic fibrosis. For one of my modules I am creating a documentary about my...

Texting buddies CF pals

Anyone interested in staying connected and becoming friends over time sharing stories and just been a great support for one another and...

How many Creon 25,000

Hi I’m a 47 year old secret cf patient in Stourbridge. For the last 3 years started having really bad stomachs, bloating...

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