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Read conversations, start a discussion, and connect with others about cystic fibrosis.

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Staying hydrated with CF

The weather is heating up! How do you make sure that you or your little CFer avoid dehydration while still having fun? Share your tips below!...

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Connecting with Other CFers

Let's talk about those CF connections! Do you feel like it is easier to talk about your disease with others that also have CF? How do you find others with...

Active 6 days ago

Carriers pain, cramping, gas, and constipation diarrhoea kidneys and duct inflamation

My elderly parent in the family with CF ( but has never been tested for carrier status ) As I understand it CF carriers, especially the elderly pancreas do not...

I wonder how many people are carriers & only find out after genetic testing during pregnancy?

I have had asthma, eczema & allergies from an early age. My brother has asthma & seasonal allergies. My sister was diagnosed with CF only when she was in her...

Tilting therapy bed for physio for CF

I have a tilting bed supplied specifically for CF physio, but my boys only used it twice as they preferred the wedge on the floor. If anyone would like it...

Hello everyone, I'm a Respiratory Therapist and wanted to check in.

Good afternoon, I'm a long-time therapist in middle TN, and I've had the privilege of taking care of many patients with cystic fibrosis over the years. My first experiences with...

General friendly question.

How is everyone doing?...

New to Trikafta-please respond

Hi. I just started taking Trikafta a week ago after the sickest year of my life. I started it while on levaquin and doxy. I culture pseudomonas and recently had...

when a cf child reaches 18 and transitions into being an adult

My husband and I would love to hear from parents/caregivers with a CF child transitioning into the adult world. We are nervous about all the changes we're facing. Insurance is...

Trikfta side effects

I’ve been on Trikfta since 2019 and I’ve developed cataracts on both eyes. I’m 41 years old which I was told this normally happens in children, adolescents, and young adults...

Will you take our In America survey and help others understand the true impact of cystic fibrosis?

The In America survey is now closed. To better understand the patient experience and realities of living with cystic fibrosis, we are fielding our Cystic Fibrosis In America survey. By...

Let's Talk Food!

Food is an essential part of life, but it can be a complicated subject when you have CF. What foods do you or your loved one eat most to get...

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