Lifetime of Hill Rom VestHi everyone, I am new at this forum and could not find any topic about Hill Rom Vest 105 system which is a crucial part of our daily care. What...Reactions 0 reactions Comments3 repliesDaily Treatment
Your voice matters! Take our CF surveySpreading awareness drives hope and change. Bring awareness to this rare disease and share your truth through our survey today! Whether you are a patient or a caregiver, your daily...Reactions 0 reactions Comments0 repliesAwareness
Far Apart, but Close in HeartPeople living with cystic fibrosis are required to stay at least 6-feet apart from each other. Do you make an effort to stay connected with CFers other ways? If so...Reactions 0 reactions Comments3 repliesCopingTips & Advice
Atypical CFHello, Atypical Cystic Fibrosis... I wonder if anyone can help please. I am 46 years old I have had bronchiectasis diagnosed in 2008 by HRCT after suffering symptoms all my...Reactions 0 reactions Comments4 repliesDiagnosisSymptoms
PneumoniaHello. I’m a caregiver for my husband who was hospitalized last week with pneumonia, but he has a new ‘symptom’ that hasn’t happened before - memory loss. They said it...Reactions 0 reactions Comments1 repliesCaregivingSymptoms
New diagnosis / Any information / KaftrioHi, my partner and I have just had our first child, (a little boy) and unfortunately he's been diagnosed with CF. He had meconium ileus at birth, very low enzyme...Reactions 0 reactions Comments1 repliesCopingDiagnosisTrikafta
CF CaregiversAnyone who cares for a loved one with CF is absolutely incredible. The amount of time they dedicate to their loved one's health and happiness constantly impacts their lives. Let's...Reactions 0 reactions Comments2 replies
Gut problems I’m 52, was diagnosed at birth with CF. Last 1.5 years many issues with a regular blockage in left quadrant in intestines. Regularly do magnesium citrate to clean out (...Reactions 0 reactions Comments1 repliesCoping
Cystic Fibrosis and Covid vaccine -15 year oldHello, I am new to this forum and needed an outlet for my queries. I am the stepmother to a 15 year old boy with cystic fibrosis. His maternal mother...Reactions 0 reactions Comments6 repliesAwarenessCaregiving
living with CF as a 17 year old.I’m 17 and was diagnosed with CF at 3 months old. I have a friend that also has CF and we go to the same school. I’ve known her since...Reactions 0 reactions Comments1 replies