What type of articles are you interested in seeing more of?Are there any CF-related topics you want to learn more about? Let us know by sharing here....Reactions 0 reactions Comments1 replies
SupportI need to talk to someone badly, i was out with my support worker it was freezing cold i forgot to put my oxygen on and didnt get wnough time...Reactions 0 reactions Comments11 repliesDepression
Bronchoscopy--what to expect?Hi everyone, I am having a bronchoscopy done to get a better idea of what is happening in my lungs following a CT scan. Have you had one done? What...Reactions 0 reactions Comments1 repliesSymptomsDaily Treatment
Curious 🤔I've seen a post on here saying marijuana/ I mean do CF people smoke that stuff and doesn't it effect them even more ??? I'm curious how that works 🤔...Reactions 0 reactions Comments4 repliesMedical Marijuana
Trikafta (Kaftrio) causing Bad Memory Loss?Hi, I have been on Trikafta from June 2021. My lung function has went up 20%, and I generally feel a lot better. However my memory is starting to get...Reactions 0 reactions Comments9 repliesTrikaftaSide EffectsTips & Advice
Co parentingDoes anyone have any advice on co parenting with a baby with cf? I think she’ll have to live mainly with me as I am her primary care giver anyways...Reactions 0 reactions Comments2 repliesCaregiving
Blood testsHello so I have to do some blood tests. Long story short, I went to go take my blood tests, and the phlebotomists say they are having trouble finding blood...Reactions 0 reactions Comments0 repliesTips & AdviceSymptomsDiagnosis
What do you wish others knew about being a caregiver or parent to someone with CF?It can be challenging for people to understand what it's like caring for someone with cystic fibrosis. What do you wish others knew about your caregiving experience? Share below!...Reactions 0 reactions Comments0 replies
A place to remember...Over the years, many of us have lost loved ones to cystic fibrosis. Share your stories of those who are no longer with us as we celebrate their life and...Reactions 0 reactions Comments0 repliesGrieving
FeaturedDoes anyone remember Sammi's Story by Philippa Manning, 1993!?I am a final year Sociology student with Cystic fibrosis. For one of my modules I am creating a documentary about my experience with CF. I was hoping to include...Reactions 0 reactions Comments8 replies