FeaturedWill you take our In America survey and help others understand the true impact of cystic fibrosis?To better understand the patient experience and realities of living with cystic fibrosis, we are fielding our Cystic Fibrosis In America survey. By taking this anonymous survey, you can help...Reactions 0 reactions Comments0 repliesAwareness
FeaturedStaying hydrated with CFThe weather is heating up! How do you make sure that you or your little CFer avoid dehydration while still having fun? Share your tips below!...Reactions 0 reactions Comments3 repliesWeather
Tilting therapy bed for physio for CFI have a tilting bed supplied specifically for CF physio, but my boys only used it twice as they preferred the wedge on the floor. If anyone would like it...Reactions 0 reactions Comments0 repliesDaily Treatment
Hello everyone, I'm a Respiratory Therapist and wanted to check in.Good afternoon, I'm a long-time therapist in middle TN, and I've had the privilege of taking care of many patients with cystic fibrosis over the years. My first experiences with...Reactions 0 reactions Comments0 repliesHealthcare Team
General friendly question.How is everyone doing?...Reactions 0 reactions Comments1 repliesCopingFriends & FamilyWork & Employment
New to Trikafta-please respondHi. I just started taking Trikafta a week ago after the sickest year of my life. I started it while on levaquin and doxy. I culture pseudomonas and recently had...Reactions 0 reactions Comments2 repliesTrikafta
when a cf child reaches 18 and transitions into being an adultMy husband and I would love to hear from parents/caregivers with a CF child transitioning into the adult world. We are nervous about all the changes we're facing. Insurance is...Reactions 0 reactions Comments1 repliesCaregiving
Trikfta side effects I’ve been on Trikfta since 2019 and I’ve developed cataracts on both eyes. I’m 41 years old which I was told this normally happens in children, adolescents, and young adults...Reactions 0 reactions Comments14 repliesLung TransplantTrikaftaTips & Advice
Let's Talk Food! Food is an essential part of life, but it can be a complicated subject when you have CF. What foods do you or your loved one eat most to get...Reactions 0 reactions Comments21 repliesCaregivingDiet & Nutrition
My breathing and being in painI have alots of trouble breathing some days I have to make myself do a little house work but sometimes I think I'm going in circle and not seem to...Reactions 0 reactions Comments0 replies
DawnMy daughter Dawn had Cystic-Fibrosis. She was born in Oct of 64, and she lived for 32 years. Dawn passed in May of 95. She went to in CHOP Phila....Reactions 0 reactions Comments0 replies