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Kenny Boutot

Cystic Fibrosis Community Advocate Kenny Boutot Kenny was diagnosed with CF (double delta f508) at 7 months old in 1988. In the time since his diagnosis, he has worked diligently to maintain his health and lead a fairly traditional life through dedication to regimented treatments, pills, exercise, and lots of luck. Throughout the years, Kenny has continued to be involved in various capacities with CF fundraising efforts and events, helping to raise awareness and money to go towards research for new methods and medications used in treatments. Now in his 30’s, Kenny works for a technology startup and lives in Philadelphia, and he is excited to share his perspective and experiences on a new platform with such a large audience.

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