My 25-Year Anniversary of CF DiagnosisThe 25th anniversary of my diagnosis. It crept up on me without my noticing. I was on a meeting a week or so ago discussing when we started showing symptoms... By Jennifer Oramas3 min readBookmark for later
Painsomnia: The Unspoken CF SymptomPainsomnia became more of an issue for me in my twenties when I felt it was a symptom often overlooked by CF doctors. I explicitly remember telling a ward physician... By Emma Boniface2 min readBookmark for later
What to Say When Your Friend's Child is Diagnosed with CFFive years ago, when my daughter Caroline was two weeks old, she was diagnosed with cystic fibrosis (CF). Initially, we kept her diagnosis private, only telling close family members. This... By Holly Williams4 min readBookmark for later
My 25-Year Anniversary of CF DiagnosisThe 25th anniversary of my diagnosis. It crept up on me without my noticing. I was on a meeting a week or so ago discussing when we started showing symptoms... By Jennifer Oramas3 min readBookmark for later
Painsomnia: The Unspoken CF SymptomPainsomnia became more of an issue for me in my twenties when I felt it was a symptom often overlooked by CF doctors. I explicitly remember telling a ward physician... By Emma Boniface2 min readBookmark for later
What to Say When Your Friend's Child is Diagnosed with CFFive years ago, when my daughter Caroline was two weeks old, she was diagnosed with cystic fibrosis (CF). Initially, we kept her diagnosis private, only telling close family members. This... By Holly Williams4 min readBookmark for later
My 25-Year Anniversary of CF DiagnosisThe 25th anniversary of my diagnosis. It crept up on me without my noticing. I was on a meeting a week or so ago discussing when we started showing symptoms... By Jennifer Oramas3 min readBookmark for later
Painsomnia: The Unspoken CF SymptomPainsomnia became more of an issue for me in my twenties when I felt it was a symptom often overlooked by CF doctors. I explicitly remember telling a ward physician... By Emma Boniface2 min readBookmark for later
What to Say When Your Friend's Child is Diagnosed with CFFive years ago, when my daughter Caroline was two weeks old, she was diagnosed with cystic fibrosis (CF). Initially, we kept her diagnosis private, only telling close family members. This... By Holly Williams4 min readBookmark for later
Getting Triggered By CF Medical TraumaI had cystic fibrosis (CF) exacerbations every other month for many years. The routine was pretty much the same. My doctors would tell me to call them if I felt... By Katelyn Harlow3 min readBookmark for laterReactions 0 reactions Comments0 comments
Post Trikafta Flare-UpsReceiving the gift of Trikafta didn’t feel like a cure, it felt more along the lines of a promise. It felt like it promised me a life back that I... By Mikayla Bianchin3 min readBookmark for laterReactions 0 reactions Comments0 comments
Cycling Across America with CFI was diagnosed with CF at birth, and currently am 44. I am lucky enough to be part of the evolution of changing treatments. If I look back 30-40 years,...Bookmark for laterReactions 0 reactions Comments1 comments
SweatI don't understand why I sweat so much . I can get up trying to clean and I get to sweating having trouble breathing . I just ask God to...Bookmark for laterReactions 0 reactions Comments0 replies
