Tips for Employment with Cystic Fibrosis

As Cystic Fibrosis patients continue to age, it is important to consider what types of jobs and careers would suit them. With advancements in both technology and medicine, more opportunities are possible. Being gainfully employed can look different today than a few years ago!

What is gainful employment? Gainful employment is another way of saying you have a job that pays you an hourly or yearly salary. Being able to work is a goal for many people with Cystic Fibrosis. But there are crucial things to think about as you look for work.

Living with Cystic Fibrosis forces you to consider things that healthy-bodied people do not think of. Job searches also look different when you are living with a life-changing condition such as Cystic Fibrosis. I want to share some important things to look for when searching and applying for jobs.

Employment and cystic fibrosis

When looking for a job, knowing what would be required of you if you worked there is essential; this includes workplace responsibilities and the workplace environment. For example, would the job you are interested in require a lot of walking? Cystic Fibrosis can cause shortness of breath, which is made worse by having to walk more than one is able to. A job that requires a lot of walking can be difficult for someone with Cystic Fibrosis.

Another thing to consider is the job's responsibilities. Would the job require you to be in an office during every shift? Or would a work-from-home option be available? Having the flexibility of working from home can be beneficial for many reasons. For example, Cystic Fibrosis patients are more likely to get sick during cold and flu season. Having a job that allows you to choose where you work can be helpful in protecting your health.

Choosing the best benefits package for you and your needs

In addition to knowing the job's requirements, you need to know about their benefits. Benefits refer to health insurance, dental insurance, eye insurance, etc. But this may not apply to you if you are under a spouse or parent's insurance plan.

When looking at benefits packages, there are often many options, and that can be very overwhelming. You want to ensure that you are informed and understand the jargon that insurance plan providers use. For example, health insurance includes in-network, out-of-network, out-of-pocket max, and deductible, some terms you will often hear.

When I had my first job that provided me with insurance, I felt overwhelmed when choosing health insurance packages. Thankfully, some people specialize in this very thing, so you want to use those resources. During that time, and many times since, I reached out to HR, the social worker at my CF clinic, and sought guidance from family and friends. They were all able to explain things to me, so I understood what my options were. From that information, I made the best decision for me.

Possible need of workplace accommodations

What are workplace accommodations? Workplace accommodations are adjustments that employers make to make it possible for disabled persons to work.¹ Some examples of workplace accommodations include specialized equipment and flexible hours.

How is this connected to Cystic Fibrosis? Cystic Fibrosis is an invisible illness, but invisible illnesses can still require accommodations and considerations. For example, having a flexible work schedule can be a great thing to look for when applying for jobs. Energy levels and general good health can vary from day to day with Cystic Fibrosis. Flexible hours can help Cystic Fibrosis patients complete their work tasks while prioritizing their health and wellness.

In addition, it is crucial to ensure that a company will accommodate your need for time off to see your CF center. You may choose not to disclose your doctor appointment beyond asking for the time off. What you share about your experience with Cystic Fibrosis is up to you, but you need to make sure that getting time off will be accepted to help you stay at your healthiest.

As the Cystic Fibrosis population continues to grow older, more and more patients will have experience with work. If you can work, it is important to remember that living with Cystic Fibrosis doesn't just affect you at home; it will also affect you at work. Be sure to investigate the company's environment, resources, and history of working with differently-abled people. And remember that you will be a great addition to whichever company you work for.