You Know You Have CF When...
Let's play a game! What would you add to complete this sentence: “You know you have CF when... ?”
There are so many funny and painfully true answers to this question because living with cystic fibrosis is such a unique, albeit challenging, experience. I love reading lists like these because it reminds me that I am never alone in this life. So many people have experienced the same joys, pain, and just plain gross moments that come along with CF that we can all take a minute to laugh together. Here are 35 of my favorite “You know you have CF when...” answers:
“You know you have CF when...”
- You have never met most of your other CF friends in real life, only over screen
- You know where the phrase “sixty-five roses” originated
- You can explain the complexities of health insurance to all your friends after they get their first jobs
- You have cooked, cleaned, finished homework, done your make-up or eaten all while wearing doing breathing treatments
- You have been stopped by TSA and have to explain that your Vest is not a bomb or a life preserver but medical equipment
- You have a pulmonologist, endocrinologist, nephrologist, otolaryngologist, and gastroenterologist, but no PCP
- You know that a CF clinic appointment is actually an all day affair
- You can swallow 10+ pills at one time without choking
- Your appetite is bigger than all the grown men’s in your family
- You know how to silence a hospital IV pump
- You have no issue talking about poop, mucus, or other bodily functions
- You are considered middle-aged at 25 (and feel like it)
- You’re told by a complete strange to “stop smoking”
- After explaining CF, you’re then told by the same stranger you can be cured with essential oils
- You have to poop anytime, anywhere
- You know the phrase “tune-up” has nothing to do with fixing a car
- Wearing a mask and staying six feet apart was cool before COVID
- You realize cystic fibrosis-related diabetes is actually a whole other disease to deal with
- Your parents could locate you by your cough in the grocery store growing up
- You become your own salt factory in the summertime
- You have a complete wardrobe of “skinny clothes,” “less skinny clothes,” and “prednisone clothes”
- You move into the hospital like you’re moving into your (very expensive) brand new apartment
- You become BFFs with the local pharmacy staff
- You have your CF doctor’s personal cell phone number
- You look perfectly healthy until a cough escapes and ruins your whole cover-up
- You can remember the name, spelling, dose, and purpose for all 20 of your medications
- Gaining a few pounds during the holidays is celebrated
- You know which antibiotics treat which bug
- You were told you wouldn’t survive adulthood and now have no retirement fund
- You know what “spit or swallow” is actually referring to
- Your parents used to “beat” or “clap” you as a child
- You have removed your own IV, PICC line, or port needle after a course of IVs
- You know that Scandishakes are actually disgusting but you still drank them
- You’ve been paid to participate in a research study and know it’s awesome!
- You’ve blown out birthday candles in a plastic bow on a swivel chair
What about you?
What would you add to this list? Share with us below!
This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Cystic-Fibrosis.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.
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