Thank You! To My CF Caregivers
As a person living with cystic fibrosis (CF), I know my life is hard. I know I go through so many things that an average person would not understand. I would be selfish if I did not take time to thank my caregivers for all their love, sacrifices and silent suffering that they endure while watching my go through this CF journey.
With that, I’d like to say thank you!
Thank you for holding my hand when I was in pain and crying because I know it pained you and made you crumble inside knowing you couldn’t fix it. Thank you for helping me walk when I couldn’t do it by myself and thank you for getting my walker when I felt I could do it. Thank you for encouraging me in moments where I felt like giving up because CF was overwhelming me.
Being my strength
I know inside many times you wanted to give up, but you found strength for yourself and for me and I cannot ignore that. Thank you for sleeping in the hospital with me so I wouldn’t be alone, I watched you sleep in uncomfortable chairs and at moments lose sleep because you were so worried about me in the hospital bed two feet away, you tried to hide your fears, but I could see it in your eyes.
Thank you for telling me that I’m beautiful when I could not see in my own reflection because I was too skinny and pale or too bloated from medication. You made all the difference in making sure I felt like the most beautiful woman in the world, and I am so thankful for you. Thank you for suffering with me, crying with me and being my strength.
To my husband and family
I truly feel blessed to have you as my husband because you’ve really gone above and beyond to make sure that I am well cared for and well loved. Thank you to my family for everything that you’ve done and continue to do for me. I always know that if I ever need anything that I can just call you guys and you guys always without hesitation are by my side.
Thank you for all your worrying and your efforts to keep me safe and the way you guys simply always think of my health. Thank you for being so understanding and learning how to handle and deal with CF because this was a learning curve, we all had to learn together.
You never let me feel left out or different growing up and helped me understand that while I was sick and different, I was special and adjusted games so I could play. Thank you for sacrificing your time and energy on making sure I made it to adulthood. Thank you also for allowing me to be such a huge part of my nieces and nephews lives. You knew I couldn’t have children of my own, but you embraced me so much that I have a relationship with my nieces and nephews that overwhelms my heart with such joy.
To my family, to my husband. Thank you! Without you, I’m empty. I love you all!
PARENTS: Do you have a hard time finding snacks that your little CFer will eat?
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