Community Thoughts on Trikafta
There is no question about it: Trikafta has been a game-changer for the cystic fibrosis community. Since its approval by the U.S. Food and Drug Administration (FDA) in October 2019, Trikafta has been one of the hottest topics on CF message boards, Facebook pages, and forums. In December 2020, Trikafta, Symdeko, and Kalydeco were even approved for a selection of rare mutations as well.
Now, more than a year has passed since some CFers have started taking Trikafta, and researchers are learning more and more about it every day. We reached out on our Cystic-Fibrosis.com Facebook page to ask our community members about side effects they have experienced while taking Trikafta. Some results have been incredible – the term "miracle drug" has certainly rung true for certain people. Unfortunately, the opposite has also occurred – some CFers have experienced side effects that kept them from continuing the treatment.
We would love to hear more from you! Please answer these questions to let us know how you feel about Trikafta.
Trikafta and the cystic fibrosis community
Do you or your loved one with CF qualify for Trikafta?
Are you or your loved one with CF currently taking Trikafta?
If you or your loved one are taking or have taken Trikafta, has the experience been positive or negative?
What positive side effects, if any, are you or your loved one experiencing on Trikafta? (Select all that apply)
What negative side effects, if any, are you or your loved one experiencing on Trikafta? (Select all that apply)
Overall, would you recommend Trikafta to a qualifying CFer?
Thank you so much for taking the time to share your thoughts with us. It is incredibly important to us that your voice is represented in the cystic fibrosis community.
Connecting with others
While cystic fibrosis is rare, there is still a community of people in your corner. We can all learn from one another's thoughts and experiences. Check out these opportunities to connect:
- What do you want others to know about Trikafta? Share your experience in the comments below or share your story in our stories section!
- Tell us more about your thoughts and feelings about Trikafta and read what others have to say in our forum.
- In 2020, Cystic-Fibrosis.com interviewed more than 400 patients and 200 caregivers to learn more about CF. Read on to learn what they had to say about Trikafta.
- Connect with other CFers and their families on Instagram, Facebook, & Twitter!
Looking to learn more about if you qualify for Trikafta? Vertex Pharmaceuticals, the makers of CFTR modulators, have an online portal that can help.
PARENTS: Do you have a hard time finding snacks that your little CFer will eat?
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