30 Year Wait

Hello all. This is my story. I was really let down medically. 30 years ago, when I was 7 months pregnant with my second child, they was giving pregnant women all these new tests, including spinal Bifida, down's syndrome, and cystic fibrosis. And I thought, "yes I'll have these tests done". I tested positive as a CF carrier.

Carrying on

My husband at the time had the test too, and it came back negative. We left things at that. We never heard anything else about it. I've also suffered with low blood pressure, a phlegmy chest, and riddled with arthritis from head to toe. I wasn't even left on file has a carrier. And me and my partner carried on having our family. Until Google came along.

Familial fears

I knew nothing about CF. I have 4 boys and then a daughter. Two of my children are infertile my only daughter and son. They wasn't checked at birth to see if they was carriers or nothing. I was truly let down my medical professionals. I have one grandson, and thank God he's okay. But my oldest son, at 31, is planning to get married and have children.

I had the blood test last week to see exactly what gene I carry. It's not just for me, it's for my future grandchildren. I'm so glad now that I just popped into the CF centre at Castlehill. They are brilliant and told me that they should of kept it on file about been a CF carrier. But they didn't. So now I've got to wait 8 to 12 weeks for the results. But at least I get to know what gene it is.

Thank you for reading. Will keep you all updated. And hugs to you all.

Are you a carrier? Share how it has impacted your life.