CF Carrier with Daughter who passed away at age 26 from CF

When I was young I had allergies to grass, mold, dust, cats, and dogs. In my 20’s I got allergy shots which helped and then took allergy pills as I got older.

My symptoms as a carrier

While my daughter was alive I was overall healthy as a D508 CF carrier. The sweat test was negative. In my 60’s I was diagnosed with mild scleroderma. Then chronic loose stools and diarrhea started. After seeing two different gastroenterologists and negative tests for lactose intolerance, Crohn’s disease, IBS, and following Mediterranean Diet, SIBO, etc. Colonoscopy was fine. I still have diarrhea for over two years. Now I have been diagnosed with other autoimmune issues and scoliosis. Could these be related to CF carriers?

Looking for answers

I use Imodium, follow Brat diet, take fiber, but diarrhea or loose stools always return. I did get the doctor to prescribe Creon which helps a bit. I find that any doctors I talk to about CF carriers having symptoms, are not aware of this or say that since I am in my 60’s I just have age-related issues.

Can anyone relate?

Is there a CF center that actually will see a CF Carrier and discuss or treat these symptoms? Univ. of Iowa? FYI, My Irish mother and Irish Grandfather both died of Colon Cancer, I am sure they were carriers. Thanks for bringing up CF carrier symptoms.

By providing your email address, you are agreeing to our privacy policy.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Join the conversation

Please read our rules before commenting.

Community Poll

Have you taken our Cystic Fibrosis In America Survey yet?