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Diagnosed with CF @ 59

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By lynnpoe

1 min read

I had Acute & Chronic pancreatitis was often sick. But no doctor ever suspected CF. Not even when I had a lung abscess from non-resistant staphylococcus aureus.

Dealing with cystic fibrosis symptoms

Then in 2016 I had to have emergency surgery when a sinus infection broke through into a pocket behind & above my eye. From there I had a sinus infection that would not clear up & was on antibiotic rinses from July 2016. My ENT had been trying to figure out why we couldn’t clear this completely up with antibiotics that culture & a sensitivity showed was the correct medication.

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The start of my CF journey

He constantly asked questions on medical history having nothing to do with Sinuses. In April 2019 he asked me if I had ever been tested for cystic fibrosis. In June I was seen @ CF clinic where blood work was sent to the genetics lab. I was finally at 59 years of age when I was diagnosed with CF. My lung function was 40%. I was placed on Symdeko then Trikafta.

My pulmonologist told me he has no medical explanation for why I didn’t die at least 30 years ago.

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