Born too soon

My son Mark was diagnosed in 1976 and passed away from Cystic Fibrosis in 1980. There was very little treatment available for CF patients at that time and very few patients lived past the early teens.

Thankful for CF medical advancements

I have followed the advances in treatment and just finished reading Breath From Salt which chronicles the struggles to improve treatment and find a cure. The story brought tears to my eyes as the author described how just a single dose of a new drug brought noticeable relief to the CF patient. The most amazing part of the CF story is that all the research that has advanced treatment has been funded by the CF Foundation from donations!

Sending love to other CF families

I pray that no other family has to suffer the loss of a child from this deadly disease and rejoice that so many treatments are now available. Thank you to all the donors and scientists who contributed so greatly to this effort.

By providing your email address, you are agreeing to our privacy policy. We never sell or share your email address.

More on this topic

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Cystic-Fibrosis.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Join the conversation

or create an account to comment.