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My Story

I was diagnosed with CF at 3 months old, so I have known all of my life that I have had it. Also, due to some things that happened in my life, I have PTSD and severe depression and bipolar.

I turned 48 this past September, and I still have both of my original lungs! I have on Delta F508 and a rare gene. I live in Alabama. I would like to meet more people with CF and talk to them!

Tell your cystic fibrosis story here.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.


  • Maria55
    2 weeks ago

    Hi. I am 54 with my original lungs also. I was diagnosed at 2. I am on Trikafta and it works wonders.

  • Shelby Comito moderator
    2 months ago

    Hi @jeremic, thank you so much for taking the time to share a bit of your story with us. How incredible to be 48 years old with your original set of lungs – that is certainly something to celebrate!! We’re looking forward to getting to know you more and are glad you found our community. This is a safe space to find information and support, and we hope you’ll find meaningful connections with others here. – Shelby, Team Member

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