Pancreatic Cystic Fibrosis
My 12-year-old daughter was recently diagnosed with Pancreatic CF. It seems that her case is very rare. We are struggling to find an ideal diet for her. She has had several pancreatitis episodes during the year and none of the diets work to prevent more pancreatitis episodes. And she does not need digestive enzymes.
Looking for advice
Anyone with knowledge of this type of mutation that can bring light, I would be very grateful.
Have you (or a loved one) been experiencing any negative side effects from Trikafta?