Woman advocating via phone, doing research with post-it notes on her desk, and chatting with someone on her computer

How to Grow in Your Advocacy

Many of us in the CF community are well connected on social media and often share our personal experiences battling our illness to bring awareness to CF, facilitate discussion around having a disability, or connecting with others about other aspects to living with a chronic illness.

I, too, have taken this journey and more recently started expanding my advocacy efforts beyond the CF community, working with other advocates with different conditions, with healthcare companies in contributing the patient perspective, and presenting and speaking on the importance of those who receive healthcare to be involved in the development of research and treatments together with doctors and healthcare organizations.

Through experience, I have learned a few things that I want to pass on to other advocates in the CF community to expand their presence, gain more visibility, or just to be stronger advocates for themselves.

By providing your email address, you are agreeing to our privacy policy. We never sell or share your email address.

More on this topic

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Cystic-Fibrosis.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Join the conversation

or create an account to comment.