How to Grow in Your Advocacy
Many of us in the CF community are well connected on social media and often share our personal experiences battling our illness to bring awareness to CF, facilitate discussion around having a disability, or connecting with others about other aspects to living with a chronic illness.
I, too, have taken this journey and more recently started expanding my advocacy efforts beyond the CF community, working with other advocates with different conditions, with healthcare companies in contributing the patient perspective, and presenting and speaking on the importance of those who receive healthcare to be involved in the development of research and treatments together with doctors and healthcare organizations.
Through experience, I have learned a few things that I want to pass on to other advocates in the CF community to expand their presence, gain more visibility, or just to be stronger advocates for themselves.
Have you (or a loved one) been experiencing any negative side effects from Trikafta?