A Parent holds their child in the air in blanket and pillow fort.

Video: Advice To Parents Of Newly Diagnosed Kids With CF

It is not easy to learn that your child has CF. Even though the CF community has come a long way in advancements in treatment and care, having a child who is newly diagnosed with cystic fibrosis is a scary time that is filled with many unanswered questions. It is natural to feel worried, afraid, isolated, or confused.

You're not alone

There is an entire community that understands what you're feeling. Many parents have felt the same way, and they are more than willing to share their words of wisdom.

We reached out to the Cystic-Fibrosis.com Facebook community and asked them to share advice for parents of children who have recently been diagnosed with CF. We are so pleased to say that we had an outpouring of advice, support, and love.

Watch the video to see some of their responses!


What advice would you give to parents of children who are newly diagnosed with cystic fibrosis? Share in the comments below!

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This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Cystic-Fibrosis.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

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