Emma Boniface

Grief seems to go hand in hand with CF. It is impossible for sorrow not to rear its ugly head when battling a lifelong chronic illness... “chronic” stands for long-term...

Sometimes in cystic fibrosis (CF) you just happen to pull the short straw. It doesn't matter how compliant you are with daily treatment, or keeping a “CF healthy” diet. You...

I had a very interesting conversation with one of my CF nurses the other day just as we were preparing for the dreaded monthly port flush. As I mentally psyched...

Sleeping has been a great difficulty since starting Trikafta. I am not alone, the Trikafta tribe are pretty much all in agreement on this one. Those peachy pills do not like...

We all hear the physios harp on about exercise but sometimes it can be daunting thinking about where to start. It took me many years and the breakthrough of modulator...

Some of the fiercest people I know have CF. The strength, determination and sheer willpower to fight for another breath is formidable. To friends and family who don’t have the...

Painsomnia became more of an issue for me in my twenties when I felt it was a symptom often overlooked by CF doctors. I explicitly remember telling a ward physician...

Since modulators broke onto the scene for the cystic fibrosis (CF) community a few years back, having a flare up can sometimes seem a thing of the past. Which means...

Many of us are old hats when it comes to the bog standard CF stuff. So, this new territory that is the Trikafta Era feels almost like an illusion of...

One of the biggest struggles living with cystic fibrosis (CF) is managing the daily slog of treatment. This is the most common issue in CF care and one that many...

Cystic fibrosis (CF) belly equals CF bloat. One of the most uncomfortable feelings and, often complained about amongst the global patient cohort. I spent some time looking into what causes...

Before Trikafta, it was difficult to imagine life without… a cough. That cough. The cough we all know too well. I believe everyone who lives with a chronic illness hope...

Cystic fibrosis has pushed me to my limits and then compelled me to go past them; time and time again. My perspective on life has been altered in many ways...

Planning a weekend break, a long haul trip or just a family holiday has always been difficult with CF. After Covid, many patients are struggling with traveling again due to...

The definition of advocacy is to support another by giving them a voice. This, I think, rings so true when being part of the current CF community. Sometimes we are...

I have been a huge fan of alternative medicine and complementary therapies to help manage my cystic fibrosis journey. Here I share some of my top-rated add on's. Antibiotics especially...

I can’t remember the first time I experienced depression, but I know the black dog has been my friend for many years. Being at my most destructive when I was...

We are taught how to manage pancreatic insufficiency with enzymes. Then given laxatives, food diaries, and stool charts to help manage other gut issues. But, where is the prescription for...

There is usually a time in life when having CF feels embarrassing. It may be when you cough in public like you smoke a couple packs a day or perhaps...

Six months ago, I started the miracle drug, Trikafta. Six weeks ago, I stopped it. Why? Side effects. They say the definition of madness is doing the same thing over...