CF and Veganism...Especially once I learned how to cook them differently, I found so many unique recipes I had never heard of before.... By Mikayla Bianchin4 min readBookmark for laterReactions 0 reactions Comments0 comments
The Clinical Trial Consent Form: Understanding Your Rights & Responsibilities...While your health condition may benefit by participating in a clinical trial, there is also a chance that you will not receive any benefit, and you may... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
Opioids for Cystic Fibrosis Pain: Benefits, Risks, and Concerns...In other words, many people with CF are choosing not to receive formal diagnoses that can help treat their chronic pain because of fear of stigma, financial... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments2 comments
Grateful for the COVID-19 Vaccination...People with CF would be eligible to receive the vaccine starting February 25th.... By Marieliz Landa2 min readBookmark for laterReactions 0 reactions Comments0 comments
Lung Transplants and CF ...If you or a loved one with CF have received a lung transplant, how long did it take you or them to receive the procedure?... By Canadian Pharmacist2 min readBookmark for laterReactions 0 reactions Comments9 comments
Time Traveling With Trikafta...It felt as if someone handed me a piece of remembered time that CF had already left its stain on, and then asked me to relive it but as... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments1 comments
Celebrating The Benefits Of Exercise With Trikafta...A couple of times a week, I put on my mom leggings, lace up my tennis shoes, and decide to devote a short 30 minutes to myself.... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Voting With A Health Condition: What To Know...Once you know your options, you can decide which one best fits your needs, concerns, and abilities.... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments0 comments
What's The Deal With Fertility Testing And CF?...As people with CF continue to live longer, healthier lives, couples are in the unique position to decide to become parents or not.... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Home IVs...It’s one of the best ways to receive IVs without having to do an entire 2-week hospital stay.... By Marieliz Landa3 min readBookmark for laterReactions 0 reactions Comments3 comments
How CF Has Affected Our Family Dynamic ...Some examples include deciding which state to reside in based on insurance benefits and continuing to live within a close drive to our CF clinic because... By Meagan Brackeen3 min readBookmark for laterReactions 0 reactions Comments0 comments
A New Year of Stories...Now, look at your blank page... and decide what you want your story to be. You cannot undo the past, but the future is entirely unwritten.... By Jennifer Oramas3 min readBookmark for laterReactions 0 reactions Comments3 comments
Lung Transplant Surgery for Cystic Fibrosis...Many people who receive a double-lung transplant feel significantly stronger and more energetic after their surgery.... By Editorial Team 3 min readBookmark for later
Clinical Trials as a Treatment Option...Some of the common reasons people decide clinical trials are right for them include: The clinical trial process is long and expensive, and it takes... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
Routine CF Screening 101...This is just a general guide and you and your CF care team will decide together which tests are important in your individual care.... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Can Cystic Fibrosis Cause Hearing Loss?...For those people with CF who frequently receive high doses of aminoglycocide antibiotics by IV, it may be helpful to get regular hearing tests to screen... By Editorial Team 2 min readBookmark for later
The Many Colors of Cystic Fibrosis: Red (Part 2)...In addition to routine PET scans, I receive weekly bloodwork to keep tabs on my EBV levels.... By Nicole Kohr3 min readBookmark for laterReactions 0 reactions Comments0 comments
Can Women With CF Successfully Breastfeed?...Your doctor can help you decide which antibiotics are safe to take and which ones should be avoided.... By Janeil Whitworth2 min readBookmark for laterReactions 0 reactions Comments0 comments
Living In The Trikafta Era...I have struggled with Trikafta side effects which felt debilitating at first until finding a regime that thankfully worked for me, even with a reduced... By Emma Boniface2 min readBookmark for laterReactions 0 reactions Comments0 comments
Everything You Have Always Wanted To Know About Keeping A Treatment Diary...Maybe it will be a special occasion day like a birthday or perhaps just a random day that you decide you are “checking out”.... By Emma Boniface3 min readBookmark for laterReactions 0 reactions Comments0 comments