What I Wish People Knew About CF
If you are reading this article, you probably know what cystic fibrosis is. You may have cystic fibrosis yourself and understand what it is like to live with it every day. However, not everyone has heard of CF or knows very much about it. Since cystic fibrosis is a rare condition affecting about 30,000 people in the United States, it just does not touch the lives of everyone out there.
We want to continue to spread awareness of not just what CF is, but how it affects people every day.
I wish people knew that CF is ...
We posted on our Facebook page, "Fill in the blank: I wish people knew that cystic fibrosis __________."
Our community members certainly spoke up! We had almost 100 comments sharing the many different things they wish others knew about cystic fibrosis. Here are just a few that we put together for you.
What is it like living with cystic fibrosis?
Do you live with cystic fibrosis? Does a loved one, such as a spouse, parent, child, or grandchild, live with it? We want to hear how CF has touched your life and what you want others to know about it. Please share your thoughts with us in the comments below.
Have you (or a loved one) been experiencing any negative side effects from Trikafta?