If There Was One Thing I Could Change about Healthcare
In my health journey, I have experienced times when doctors have treated me as though I don’t understand enough about my disease for it to be worthwhile to explain details to me or to ask what decision I would like to make in my care.
We deserve support and encouragement from healthcare providers to help us in shared decision-making. Over time, I have learned how to express my thoughts and be equal partners with my doctor.
In this video, I talk about this topic and the advice I have for those who are new to diagnosis or uncomfortable with the idea of self-advocating.
Watch the video
What would you change about healthcare?
Share with us in the comments below!
Have you (or a loved one) been experiencing any negative side effects from Trikafta?