Woman speaks into microphone with shaking hand and body

If There Was One Thing I Could Change about Healthcare

In my health journey, I have experienced times when doctors have treated me as though I don’t understand enough about my disease for it to be worthwhile to explain details to me or to ask what decision I would like to make in my care.

We deserve support and encouragement from healthcare providers to help us in shared decision-making. Over time, I have learned how to express my thoughts and be equal partners with my doctor.

In this video, I talk about this topic and the advice I have for those who are new to diagnosis or uncomfortable with the idea of self-advocating.

Watch the video

What would you change about healthcare?

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This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Cystic-Fibrosis.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

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