Misty Roussa

When our son was diagnosed 13 years ago, cystic fibrosis was not a disease that my husband and I were familiar with. In all honesty, I had heard it a...

Like with all things regarding parenting, some choices are easier to make than others. Whether it be what school to send your child to or what pediatrician they will see...

Our Monday was just like any other day. My husband and I woke up and ate breakfast. I had some work to do so I sat in our office, half...

School is starting soon (too soon!!) and despite most state's Covid numbers, students in many areas will not have the option of going virtual this year. To lessen the likelihood...

When our son was young, getting him to do his treatments was as simple as putting on YouTube for the 20 minutes of vest and 10 minutes of nebulized medicine...

Our son is 12 years old. He has only known life with CF. As much as I try to know how is feeling and what he is thinking about this...

I think you would probably agree with me when I say that being a caregiver to someone with CF is really just going through the motions. There is not much...

Finding out that your baby has CF is such a scary, unsettling time. Your mind goes to the one thing that you know you can control: The outside world. You...

Our first visit to our care center, like most parents of a child with cystic fibrosis, was not pleasant. I vaguely remember the walk from the parking garage to the...

It was after our son's second hernia repair surgery that it was confirmed. The nurse came out to the waiting area (not good) and requested to speak with the parents...

Imagine you could have a place in preventing a tragic incident from occurring. Think about how wonderful it could be if you could prevent a mother from losing her child...

Receiving a phone call that your new child's newborn screening detected cystic fibrosis can be a frightening situation. Your doctor will probably advise you to bring your baby in for...

In our home, we are a home divided. We have fruit and vegetables and waffles and snack cakes. Anything my son wants, he usually gets. If he asks for something...

When our son was first diagnosed with CF, what began as a new parent schedule shifted gears to a caregiver schedule. Everything in our life could be measured, lined up...

I cannot think of a time that I was not anxious. I believe it is now a part of who I am. When I became a parent, it was increased...

Right now my kids are outside playing together in the sprinkler. I hear them laughing and having a great time out there. They are two years apart and, while they...

Going back to that Friday afternoon in August 2008 is still difficult for me to do. I was fatigued. I had an 8-day-old baby that wasn't eating or sleeping. I...