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How can I connect with other cftr/crms adults?

I’m 36 years old and a professional singer. I fought with a pseudomonas infection in my sinuses for two years before CF was considered. A year ago, my CF results came back intermediate (Multiple sweat tests with indeterminate results, one CF gene mutation).

I’ve had inexplicable hearing loss in one ear (never been on tobramycin; this was a pre-antibiotic issue) and I have been on nebulized Cayston for a year. The Cayston has helped my hearing return to normal and being on and off every two weeks keeps the infection at bay. I’d really love to hear if anyone else has had a similar experience.

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