FeaturedTrikafta side effectsI’m a 58 yr old female. I started Trikafta 10 months ago. It has helped diminished my cough completely but I’ve started with a lot of other symptoms. I have...Reactions 0 reactions Comments11 repliesTrikafta
FeaturedBeing a Parent with CFManaging a chronic illness can be a lot of work, but adding children to the mix makes it even harder. What is it like to be a parent with CF...Reactions 0 reactions Comments5 repliesCaregiving
The Challenges of Managing CFManaging cystic fibrosis can often require hours of treatment each day, hospital visits, etc. It's extremely challenging to manage CF, even when you're feeling well. Share any tips you have...Reactions 0 reactions Comments3 repliesCopingDaily Treatment
catheter dressing recommendationHi all! As a caregiver, I had to do a lot of trial and error for medical supplies, especially catheter dressings. I came across this medical company based in Korea...Reactions 0 reactions Comments1 repliesCaregivingDaily TreatmentPICC Lines
Working With CFHi everyone, I'm always curious what type of work other people with CF do? Are you able to work from home or have any accommodations? What do you love about...Reactions 0 reactions Comments0 repliesWork & Employment
What Excites You Most About 2020?Share what you're most excited about in the year to come...Reactions 0 reactions Comments1 replies
Far Apart, but Close in HeartPeople living with cystic fibrosis are required to stay at least 6-feet apart from each other. Do you make an effort to stay connected with CFers other ways? If so...Reactions 0 reactions Comments1 repliesCopingTips & Advice
Do You Know That Your Experience With CF Matters?Seriously, it does! When you share your personal CF experience, you help others learn more about what life is like living with CF. The more we talk about the challenges...Reactions 0 reactions Comments0 replies
TelehealthTelehealth is known to increase access to care and reduce costs. Would you ever consider using Telehealth to help manage your CF? Let's talk about it...Reactions 0 reactions Comments1 repliesHealthcare Team
PICC Line or Port?Do you have a PICC line or a port? Why did you make this choice? Would you change your decision...Reactions 0 reactions Comments1 replies
Disability Have you applied for disability? What was the process like for you...Reactions 0 reactions Comments1 repliesTips & Advice
Side effects from digestive enzymes Has anyone had a spouse that has had a digestive reaction ( diarrhea) from being with you...Reactions 0 reactions Comments1 repliesIntimacySide EffectsGI Symptoms
