FeaturedHow has CF impacted your decision to become a parent?CF can impact the ability to conceive children. How did this affect your decisions about conception? Did you pursue alternative methods or choose not to become a parent...Reactions 0 reactions Comments0 repliesFriends & Family
FeaturedDoes anyone remember Sammi's Story by Philippa Manning, 1993!?I am a final year Sociology student with Cystic fibrosis. For one of my modules I am creating a documentary about my experience with CF. I was hoping to include...Reactions 0 reactions Comments3 replies
Active 2 days agoGetting older with cfI'm nearly 46 Every1 is talking about my 50th The doc told my dad when I was born she won't get to 5 yrs Now we have the magic pills...Reactions 0 reactions Comments3 replies
Active 2 days agoTeaching Children Self-Management SkillsTeaching young children the skills to manage their CF is imperative for their growth. If you have young children with CF, share tips on ways you've taught them how to...Reactions 0 reactions Comments3 replies
Active 2 days agoTrikaftaTrikafta nearly killed me. Inside of 3 months I was in total liver failure. I was in and out of the hospital 5 times before going in and staying 42...Reactions 0 reactions Comments1 repliesTrikaftaMental HealthSide Effects
Active 3 days agoKaftrio and stomach painWhen my daughter forgets to take her Kaftrio she gets bad stomach pains. Is this common...Reactions 0 reactions Comments2 replies
Active 5 days agoFill in the blank: ___________ is something that only someone with CF would understand. Share something that only those living with CF of caring for a loved one with CF would truly understand. Let's raise awareness by talking about topics that are uniquely related...Reactions 0 reactions Comments9 repliesAwareness
Muscle aches & weaknessJust wondering if anyone here , experiences very painful and sore muscles, I have been having alot of muscle pain in my shoulders, and sides especially My shoulde blades are...Reactions 0 reactions Comments3 repliesTips & Advice
What are your favorite ways to de-stress?Whether you live with cystic fibrosis or care for someone living with CF, it's normal to feel overwhelmed from time to time. When feeling stressed or anxious, what are your...Reactions 0 reactions Comments8 replies
FeaturedTrikafta side effectsI’m a 58 yr old female. I started Trikafta 10 months ago. It has helped diminished my cough completely but I’ve started with a lot of other symptoms. I have...Reactions 0 reactions Comments21 repliesTrikafta
Orkambi or Trikafta?Hello, My 14-year-old son has cystic fibrosis. Soon, in Romania, we will benefit from Orkambi and Trikafta medicines. From your experience, do we need to start with Orkambi and then...Reactions 0 reactions Comments2 repliesDaily TreatmentTrikaftaHealthcare Team
Motivation while constantly getting sickI've been trying to gain some muscle mass, and made encouraging progress. I have a very small stature for a male at 5ft2 19 years with the bone density half...Reactions 0 reactions Comments7 repliesDepressionMental HealthTips & Advice
