FeaturedStaying hydrated with CFThe weather is heating up! How do you make sure that you or your little CFer avoid dehydration while still having fun? Share your tips below!...Reactions0reactionsComments7 repliesWeather
FeaturedConnecting with Other CFersLet's talk about those CF connections! Do you feel like it is easier to talk about your disease with others that also have CF? How do you find others with...Reactions0reactionsComments28 replies
Active 3 days agoKaftrioHi so my sons been diagnosed twice now with his liver function ast and alt too high of these new medication (kaftrio) which works brilliants on most people and I’m...Reactions0reactionsComments1 repliesCoping
Active 6 days agoRant Any1 here who can relate please 🙏🏼🥺 Not sure what it is with some women toxic ASFFF 🙄 You stay single years work on yourself feeling great then you feel...Reactions0reactionsComments1 repliesCopingDepressionAwareness
Active 8 days agoMiralax gummies Anybody tried these in place of Miralax powder?...Reactions0reactionsComments1 repliesGI SymptomsDiet & NutritionDaily Treatment
CF relationship Just need to vent 😭 Well we went out for a meal last nite she did nowt but shout at me carry on n she went out for a fag...Reactions0reactionsComments0 repliesCopingDepressionAwareness
If it wasn't for bad luck I'd have no luck at allCystic fibrosis is one of the most horrible illnesses a person can get. I have seen what it does and I will never forget it. My daughter has it she's...Reactions0reactionsComments27 repliesCopingCaregiving
My Daily CF RoutineUntil last year I had no problem waking up at 7am and getting ready and doing my treatments which takes 1½hr then leave for college which is ½hr away from...Reactions0reactionsComments3 replies
RelationshipsAre you experiencing pain during intimacy? How is it affecting your relationships? Share any tips/advice! (Remember, this is a place to talk about personal experiences and you’re welcome to suggest...Reactions0reactionsComments2 repliesIntimacy
MisdiagnosedWhen I was one, my mom took me to a pediatric urgent care because I was filling every diaper with diarrhea. When it was my turn, they led us into...Reactions0reactionsComments1 replies