FeaturedActive yesterdayHospital admissions & fed up Is there any coping strategies people use whilst in a state of depression due to our CF bringing us down I mean I have my good days and laugh and...Reactions 0 reactions Comments0 repliesDaily TreatmentDepressionMental Health
FeaturedActive 6 days agoCaregiver Month Giveaway ForumFor entry into our giveaway, respond below to the following question: What has been your proudest moment as a caregiver to a CF warrior...Reactions 0 reactions Comments9 repliesCaregiving
Active yesterdayCurious 🤔I've seen a post on here saying marijuana/ I mean do CF people smoke that stuff and doesn't it effect them even more ??? I'm curious how that works 🤔...Reactions 0 reactions Comments0 repliesMedical Marijuana
Active yesterdayBenefits PIP Whilst having CF is there only two benefits you can claim i.e p.i.p and ESA or is there other things and grants out there anyone knows about that could help...Reactions 0 reactions Comments0 repliesCopingCost
Active yesterdayMuscle weakness and crampingAnyone else suffering with muscle weakness and cramping and leg muscle twitches... It's hard exercising when your lungs are saying no but your mind is like yes & barely sleeping...Reactions 0 reactions Comments0 repliesSleepTips & Advice
Active yesterdayNew port in my armAnyone else find them really uncomfortable 😣 and itchy? I've had mine over a month and I've had pain in my arm and chest on and off not to mention...Reactions 0 reactions Comments0 repliesPortsSide EffectsTips & Advice
Active yesterdayTexting buddies CF palsAnyone interested in staying connected and becoming friends over time sharing stories and just been a great support for one another and if and when give advice if ever needed...Reactions 0 reactions Comments0 repliesAwarenessCopingDepression
Active yesterdayMuscle aches & weaknessJust wondering if anyone here , experiences very painful and sore muscles, I have been having alot of muscle pain in my shoulders, and sides especially My shoulde blades are...Reactions 0 reactions Comments4 repliesTips & Advice
Active yesterdayTrikafta (Kaftrio) causing Bad Memory Loss?Hi, I have been on Trikafta from June 2021. My lung function has went up 20%, and I generally feel a lot better. However my memory is starting to get...Reactions 0 reactions Comments3 repliesTrikaftaSide EffectsTips & Advice
Medicine in IsraelDoes anyone know if Pulmozyme and TOBI are available for sale in Israel? Any idea of cost since will be paying out of pocket...Reactions 0 reactions Comments0 repliesCost
