FeaturedDoes anyone remember Sammi's Story by Philippa Manning, 1993!?I am a final year Sociology student with Cystic fibrosis. For one of my modules I am creating a documentary about my experience with CF. I was hoping to include...Reactions 0 reactions Comments2 replies
FeaturedTrikafta side effectsI’m a 58 yr old female. I started Trikafta 10 months ago. It has helped diminished my cough completely but I’ve started with a lot of other symptoms. I have...Reactions 0 reactions Comments14 repliesTrikafta
Active 5 days agoGut problems I’m 52, was diagnosed at birth with CF. Last 1.5 years many issues with a regular blockage in left quadrant in intestines. Regularly do magnesium citrate to clean out (...Reactions 0 reactions Comments0 repliesCoping
living with CF as a 17 year old.I’m 17 and was diagnosed with CF at 3 months old. I have a friend that also has CF and we go to the same school. I’ve known her since...Reactions 0 reactions Comments1 replies
Kaftrio Hello, Has anybody who takes kaftrio found they have become very negative, short tempered, low moods. just generally not yourself. I’ve been with my partner for 10yrs who has CF...Reactions 0 reactions Comments3 replies
sodium chloride and acetlysisteine back ordered and unavailable I have been out of two of my most needed nebulized medicines. Apparently there is a shortage of both of these and getting them from my pharmacy has been a...Reactions 0 reactions Comments1 repliesDaily Treatment
dealing with painHaving my form of CF has brought alot of problems , Pain has become even more so. I seem to be having more of it each day. I have taken...Reactions 0 reactions Comments3 repliesDiagnosis
Cystic Fibrosis and Covid vaccine -15 year oldHello, I am new to this forum and needed an outlet for my queries. I am the stepmother to a 15 year old boy with cystic fibrosis. His maternal mother...Reactions 0 reactions Comments3 repliesAwarenessCaregiving
CF CaregiversAnyone who cares for a loved one with CF is absolutely incredible. The amount of time they dedicate to their loved one's health and happiness constantly impacts their lives. Let's...Reactions 0 reactions Comments2 replies
coping with CF As my CF advances, I notice my limitations. My breathing has become much harder. I now have to use oxygen more often. I am notcing more pain in between my...Reactions 0 reactions Comments1 repliesDiagnosisCoping
