FeaturedFill in the blank: ___________ is something that only someone with CF would understand. Share something that only those living with CF of caring for a loved one with CF would truly understand. Let's raise awareness by talking about topics that are uniquely related...Reactions 0 reactions Comments6 repliesAwareness
FeaturedDoes anyone remember Sammi's Story by Philippa Manning, 1993!?I am a final year Sociology student with Cystic fibrosis. For one of my modules I am creating a documentary about my experience with CF. I was hoping to include...Reactions 0 reactions Comments2 replies
CF CarrierHi, I’m a CF carrier, I found out 5 years ago when attempting to donate some eggs! I have since had 2 children, no1 (boy) not a CF carrier but...Reactions 0 reactions Comments3 repliesCarriers
Cystic fibrosis adult onset?Hi everyone 🙋🏻♀️just a quick introduction. I am 47 years old and live in the Netherlands. I have severe intestinal complaints and therefore had a colonoscopy, in addition to active...Reactions 0 reactions Comments3 repliesDiagnosisGI Symptoms
Two parents that both have CFI've been searching for this answer but haven't found anything about it available. Is there any research on two Cystic Fibrosis patients having kids together. What I'm wondering, is it...Reactions 0 reactions Comments1 repliesResearch & Clinical Trials
Kaftrio and pseudomonas Hello everyone. I hope all are keeping well. My son started kaftrio a month and a half ago today, he never had any 'purge' as they call it.... Where you...Reactions 0 reactions Comments1 repliesDaily Treatment
Getting older with cfI'm nearly 46 Every1 is talking about my 50th The doc told my dad when I was born she won't get to 5 yrs Now we have the magic pills...Reactions 0 reactions Comments1 replies
Lifetime of Hill Rom VestHi everyone, I am new at this forum and could not find any topic about Hill Rom Vest 105 system which is a crucial part of our daily care. What...Reactions 0 reactions Comments3 repliesDaily Treatment
Orkambi or Trikafta?Hello, My 14-year-old son has cystic fibrosis. Soon, in Romania, we will benefit from Orkambi and Trikafta medicines. From your experience, do we need to start with Orkambi and then...Reactions 0 reactions Comments1 repliesDaily TreatmentTrikaftaHealthcare Team
Trikafta (Kaftrio) causing Bad Memory Loss?Hi, I have been on Trikafta from June 2021. My lung function has went up 20%, and I generally feel a lot better. However my memory is starting to get...Reactions 0 reactions Comments1 repliesTrikaftaSide EffectsTips & Advice
Your voice matters! Take our CF surveySpreading awareness drives hope and change. Bring awareness to this rare disease and share your truth through our survey today! Whether you are a patient or a caregiver, your daily...Reactions 0 reactions Comments0 repliesAwareness
