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Read conversations, start a discussion, and connect with others about cystic fibrosis.

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Staying hydrated with CF

The weather is heating up! How do you make sure that you or your little CFer avoid dehydration while still having fun? Share your tips below!...

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Connecting with Other CFers

Let's talk about those CF connections! Do you feel like it is easier to talk about your disease with others that also have CF? How do you find others with...

Active 7 days ago

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For CONCERTA, ADDERALL Call/WhatsApp +971523376587 Dr Muhammad in Dubai. Medication used to treat attention deficit hyperactivity disorder (ADHD) and narcolepsy Dr Muhammad Adderall and Concerta call/whatsapp+971523376587 Duloxetine Venlafaxine Clonazepam Escitalopram...

cystic fibrosis and celiac disease

Please help. My 20 year old daughter has CF and celiac but is struggling with digestive issues. The availability of creon 35 has impacted her negatively. She can only get...

My son Joshua

Cf took my beloved child at 27 yrs 8 yrs ago. I still suffer & cry....

Creon availability

Hi all. In South Africa some of us are beginning to hear rumblings about a shortage of Creon. Are people in South Africa and around the world experiencing problems? What...

Diagnosis Shock

I have recently been diagnosed with late onset CF. I spent the first week trying to get my head around the news. I am receiving excellent care and navigating my...

What are some tips to gain weight on Trikafta

Hello everybody! So I have a rare mutation that Trikafta wasn’t approved for, but my doctor took a chance on me and I’m so glad he did!! My health has...

Atypical

I was diagnosed with atypical CF which has caused male infertility due to lack of vas deferens. Was told as a kid it was asthma but have dealt with lung...

Hair loss

I'm a woman in my 40s with CF. I'm on a modulator. Recently I have started having my hair fall out. It's coming out in clumps and filling out my...

Things I've Experienced as a Carrier

Through 23 and me I know I am a CF carrier. I know it came from my mother's side. My primary care physician was not aware that carriers could have...

Finding Out I'm A CF Carrier

I was diagnosed as a CF carrier about 5 years ago after my son, and daughter-in-law had genetic testing when she became pregnant. They found out that both of them...

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