FeaturedStaying hydrated with CFThe weather is heating up! How do you make sure that you or your little CFer avoid dehydration while still having fun? Share your tips below!...Reactions0reactionsComments3 repliesWeather
FeaturedActive todayConnecting with Other CFersLet's talk about those CF connections! Do you feel like it is easier to talk about your disease with others that also have CF? How do you find others with...Reactions0reactionsComments27 replies
Active yesterdayIf it wasn't for bad luck I'd have no luck at allCystic fibrosis is one of the most horrible illnesses a person can get. I have seen what it does and I will never forget it. My daughter has it she's...Reactions0reactionsComments10 repliesCopingCaregiving
Active yesterdayNewbie´s questionsHello good day,im newbie! Do you have pain in your neck or near your neck? Which doctor diagnosed the disease? Did your pancreas come out good or bad on the...Reactions0reactionsComments6 repliesDiagnosis
Seeking perspectives on genetic engineering and cystic fibrosisGood evening, I hope it’s okay to post this here—apologies if not! I’m a second-year college student working on a research project (EPQ) about public perceptions and ethical concerns surrounding...Reactions0reactionsComments0 replies
Medicine in IsraelDoes anyone know if Pulmozyme and TOBI are available for sale in Israel? Any idea of cost since will be paying out of pocket....Reactions0reactionsComments0 repliesCost
Benefits PIP Whilst having CF is there only two benefits you can claim i.e p.i.p and ESA or is there other things and grants out there anyone knows about that could help...Reactions0reactionsComments1 repliesCostCoping
Please help I need insurance adviceHello, I just got the saddening call yesterday that my transplant clinic is dropping me because my insurance was no longer accepting their clinic. I was devastated to say the...Reactions0reactionsComments2 repliesCostLung TransplantInsurance & Disability
How many of you do IV antibiotics at home?It’s a subject that differs with a lot of patients especially those living in the states when it comes to insurance (I’m in the UK) but I’m able to do...Reactions0reactionsComments0 repliesDaily TreatmentPortsPalliative Care
Best centers for Atypical Adult Onset DiagnosisI am a 50 year old with gradual symptoms of CF and a genetic sequencing test showing 2 extremely rare genes that could be indicative of CF, but requires further...Reactions0reactionsComments1 repliesDiagnosisTips & AdviceResearch & Clinical Trials
CF In the elderlyI am newly diagnosed at 69 years old. I’m angry and happy and so emotional. Anyone my age with CF?...Reactions0reactionsComments14 repliesAwareness