FeaturedActive 3 days agoTrikafta side effectsI’m a 58 yr old female. I started Trikafta 10 months ago. It has helped diminished my cough completely but I’ve started with a lot of other symptoms. I have...Reactions 0 reactions Comments11 repliesTrikafta
FeaturedBeing a Parent with CFManaging a chronic illness can be a lot of work, but adding children to the mix makes it even harder. What is it like to be a parent with CF...Reactions 0 reactions Comments5 repliesCaregiving
Active 6 days agoDisability Have you applied for disability? What was the process like for you...Reactions 0 reactions Comments0 repliesTips & Advice
Active 8 days agoscreening for colon cancerPatients above the age of 40 have a 5 to 10 times higher risk for colon cancer. Screening every 5 years...Reactions 0 reactions Comments4 replies
Working With CFHi everyone, I'm always curious what type of work other people with CF do? Are you able to work from home or have any accommodations? What do you love about...Reactions 0 reactions Comments0 repliesWork & Employment
Battery powered travel nebulizerHello - we are looking into battery powered nebulizers. Any favorites? I'm looking at the Pari Trek and the Devilbiss - quite a difference in price between the two for...Reactions 0 reactions Comments2 replies
CF and SmellHas CF impacted your or your loved one's sense of smell? Share your experiences with smell in this thread...Reactions 0 reactions Comments1 repliesSymptoms
CF patient writing articles about living with chronic illness, want your insightHello! I am a 26-year-old CF patient, and I am considering writing a series of articles about the experience of those living with chronic or terminal conditions. I think that...Reactions 0 reactions Comments1 repliesDiagnosisAwarenessMental Health
Motivation while constantly getting sickI've been trying to gain some muscle mass, and made encouraging progress. I have a very small stature for a male at 5ft2 19 years with the bone density half...Reactions 0 reactions Comments6 repliesDepressionMental HealthTips & Advice
Getting sickMy son has cf and every time the doctors take him off antibiotics he winds up back in the hospital. Has this happened to anyone else? The doctors don’t know...Reactions 0 reactions Comments6 repliesCaregivingDaily Treatment
Making treatments funDo you have any creative ways to make treatments feel more exciting and less scary for your child...Reactions 0 reactions Comments5 repliesCaregiving
