What are some of the early symptoms of someone with CF?
Some of the early signs for someone with CF under the age of 1 are salty skin, thick and sticky stools, malnutrition and unusual bowel movements. After a year, you may notice a chronic cough, frequent colds, shortness of breath and severe abdominal pain. You can find more information here: https://cystic-fibrosis.com/symptoms/
i have every single one of these lol
What symptoms should someone look for if they suspect adult onset CF? I am a known CF carrier, but I think I actually may have adult-onset CF.
Hello,
Some of the same symptoms would be present in an adult who has undiagnosed CF: chronic cough, frequent colds, salty skin, abdominal pain, and issues with bowel movements. They may be less obvious than someone diagnosed at infancy. Have you had your genetics tested to see if you have two mutations? I hope you can get in touch with your doctor and see if they could help you move forward with testing.
Warmly,
Janeil (cystic-fibrosis Team Member)
These are the symptoms I have too and also a carrier but unsure who I should speak to
Often a pulmonologist, or lung specialist, is a good place to start. Here is an article about being a carrier and the symptoms you may experience. https://cystic-fibrosis.com/clinical/cf-carrier-symptoms
Hope it helps! Let us know if there is anything else our team can answer for you.
Warmly, Corene (Team Member)
It is interesting how early symptoms can sometimes be difficult to connect to one particular condition, especially when things like fatigue, dizziness, changes in heart rate, or feeling unwell with activity are involved. Keeping track of when symptoms happen and what seems to trigger them can be helpful when talking with a healthcare provider. The autonomic nervous system regulates several functions that happen automatically, including heart rate, blood pressure, sweating, and digestion. If someone is experiencing several of these symptoms together, it may be worth asking their doctor whether further evaluation is appropriate. For general information about autonomic nervous system testing and how it is used to evaluate autonomic function, this may also be useful: anstest.com
