caret icon Back to all discussions

My Amazing Sister with CF

My sister battled CF like a trooper for 52 years! She was my hero and was so hard to say goodbye two years ago. If anyone wants to hear her story, let me know! I love to talk about her and how she kicked CF’s butt for longer than most.
But I’m here to find any info available for siblings of CF. I had bouts of pancreatitis for 20+ years, I battle my weight, diagnosed with MS in 2002. Anyone else have any similar experiences? Most Drs haven’t a clue about gene mutations etc. My beautiful sister

  1. Love this tribute to your beautiful sister. I hope you have many fond memories to comfort you. Have you been screened to see if you are a carrier?

    1. Thanks for sharing about your wonderful sister. I would love to hear more about her story and how she spent her life.


      I agree with the person above, it's would be a good idea to talk to your doctor about being tested as a carrier. There's research that shows carriers can also be at risk of developing health conditions often seen in CF. Here is an article explaining more: https://cystic-fibrosis.com/clinical/cf-carrier-symptoms. Warmly, Janeil (cystic-fibrosis.com Team Member)

      Please read our rules before posting.