How do you feel about using technology to help manage health? Take our survey here.
caret icon Back to all discussions

My Amazing Sister with CF

My sister battled CF like a trooper for 52 years! She was my hero and was so hard to say goodbye two years ago. If anyone wants to hear her story, let me know! I love to talk about her and how she kicked CF’s butt for longer than most.
But I’m here to find any info available for siblings of CF. I had bouts of pancreatitis for 20+ years, I battle my weight, diagnosed with MS in 2002. Anyone else have any similar experiences? Most Drs haven’t a clue about gene mutations etc. My beautiful sister

  1. Love this tribute to your beautiful sister. I hope you have many fond memories to comfort you. Have you been screened to see if you are a carrier?

    1. Thanks for sharing about your wonderful sister. I would love to hear more about her story and how she spent her life.


      I agree with the person above, it's would be a good idea to talk to your doctor about being tested as a carrier. There's research that shows carriers can also be at risk of developing health conditions often seen in CF. Here is an article explaining more: https://cystic-fibrosis.com/clinical/cf-carrier-symptoms. Warmly, Janeil (cystic-fibrosis.com Team Member)

      Please read our rules before posting.