My Story

I have lived my life with CF. My eldest brother was born 1960, a failure to thrive. My mom 24, terrified, her first born was starving. Thankfully my dad was an undergrad med student. With his medical understanding John was saved! Fast forward, 3 children later Leah came along, 1974. My mom knew something was wrong, had to fight the doctors to let them know. Leah had CF, would take her diapers in to show and all! I am the youngest of them all. I’m not sure why I am sharing all this… it’s just lonely