Cystic Fibrosis Community on Instagram

Did you know that you can find the Cystic-Fibrosis.com community on Instagram? In addition to participating in our interactive online community, we are excited to share the same great information and customized imagery on our Instagram page as well.

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Top posts

Post #1

During cystic fibrosis awareness month this May, we shared important CF facts with our community to spread awareness. People with CF cannot be within 6 feet of each other because the bacteria in their lungs can be passed to others living with CF.

 

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Each Friday during awareness month, we'll be sharing facts about cystic fibrosis to spread awareness!

A post shared by Cystic-Fibrosis.com (@cysticfibrosis_hu) on May 8, 2020 at 9:25am PDT

Post #2

We asked our community members on our Facebook page to share any tips or advice they have as a parent with a child living with CF. They offered insightful advice such as, "Ask a lot of questions", "Take care of yourself", and "Form a good relationship with the CF care team". For more tips, check out the post.

 

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If you’re a parent looking for advice for your child newly diagnosed with CF, our community is here for you! Just swipe☝️

A post shared by Cystic-Fibrosis.com (@cysticfibrosis_hu) on Apr 29, 2020 at 8:35am PDT

Post #3

One of our advocates, Marieliz, opened up about the realities of dating when living with a chronic health condition. She courageously shares how she refuses cystic fibrosis to keep her back from being in love.

 

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"I told him a week into meeting him, “I’m sick. I may not survive a long time to give you the type of relationship you want.” He listened to what I said and took it all in. From that moment on, we became inseparable." ⁠ ⁠ Tap the link in bio for the full article. 💜⁠

A post shared by Cystic-Fibrosis.com (@cysticfibrosis_hu) on Jul 1, 2020 at 2:15pm PDT

All of the imagery for Cystic-Fibrosis.com is custom made by our talented UX Team. We hope you enjoy the unique images that accompany our posts. Thanks for being part of our CF community!