Cystic Fibrosis Community on Instagram
Did you know that you can find the Cystic-Fibrosis.com community on Instagram? In addition to participating in our interactive online community, we are excited to share the same great information and customized imagery on our Instagram page as well.
Visit Cystic-Fibrosis.com on Instagram
During cystic fibrosis awareness month this May, we shared important CF facts with our community to spread awareness. People with CF cannot be within 6 feet of each other because the bacteria in their lungs can be passed to others living with CF.
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We asked our community members on our Facebook page to share any tips or advice they have as a parent with a child living with CF. They offered insightful advice such as, "Ask a lot of questions", "Take care of yourself", and "Form a good relationship with the CF care team". For more tips, check out the post.
One of our advocates, Marieliz, opened up about the realities of dating when living with a chronic health condition. She courageously shares how she refuses cystic fibrosis to keep her back from being in love.
Have you (or a loved one) been experiencing any negative side effects from Trikafta?