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Star2b28 shared a new story 2 days, 22 hours ago

I was not diagnosed until I was 7 years old. So far I have been blessed with a mild case of the disease, only having to be hospitalized once or twice a year.

I was lucky enough to give birth naturally to my […]

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Editorial Team posted a page 5 days, 19 hours ago

Kenny was diagnosed with CF (double delta f508) at 7 months old in 1988. In the time since his diagnosis, he has worked diligently to maintain his health and lead a fairly traditional life through dedication to […]

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Sarah Coff posted a new activity comment 1 week, 2 days ago

Hi @brian-gamble, thank you for joining our CF community. Would you be willing to share what you’re worried about? We’re always here to listen! – Sarah, Team Member

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Pisces-Eyes shared a new story 1 week, 3 days ago

Cystic fibrosis is different for every patient and should be treated based on the patient, not some textbook description of what the disease might be. Lung function can also be deceiving at times.

Each CF […]

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Editorial Team posted a page 1 week, 6 days ago

Noreen Tarletsky has been an active volunteer with the Cystic Fibrosis Foundation since her son, Alex, was diagnosed in 1995. While chairing, participating, and speaking at a variety of chapter events across the […]

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Editorial Team posted a page 2 weeks ago

Lauren Bombardier Weeks is an adult with cystic fibrosis who is thriving with cystic fibrosis thanks to a life changing treatment and the benefits of exercise. She is the author of the book Growing Up Sick, and […]

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MeganNorton posted a page 2 weeks, 2 days ago

Jennifer “J.Kaye” Riley is a proud member of the unofficial CF “over 40 club” and was treated off and on for cystic fibrosis throughout her childhood, until genetic mapping was able to definitively identif […]