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Hi @maria55 – thank you for being part of our community! I’m so glad to hear you’re doing well. Best wishes, Sarah, Cystic-Fibrosis.com Team Member
Hi. I am 54 with my original lungs also. I was diagnosed at 2. I am on Trikafta and it works wonders.
Hi Colin, I completely can relate to your situation. It’s hard to plan when you aren’t sure what you are even planning for. The uncertainty can be so confusing sometimes. It’s amazing you are still here and thriving at 37! Maybe you can start small this year and write down a few goals you would like to pursue and make steps to make them reality.…
Hi @tommyb, Thank you for reaching out, and being part of our community. We don’t have a chat room, however with a parent or gaurdians permission he can ask a question in our q&a section, https://cystic-fibrosis.com/q-and-a/. He can also visit our forums page (https://cystic-fibrosis.com/forum/general-discussions/) to start a conversation about…
Im 37 w CF. I expected to be deceased by now but still here. I made no plans or smart decisions bc i tho there was no need. Now Im so far behind i dont know were to begin. Ne1 else w CF relate?
Is there a Chat Room for young teens dealing with CF? My Grandson is 13.
Hi @briana, I’m glad you’re doing okay. Feel free to reach out whenever. We’re glad you’re part of our CF community. – Sarah, Cystic-Fibrosis.com Team Member
Hi @brianna2004, Thanks for sharing! How are you feeling now that you no longer have the picc line? Best, Sarah, Cystic-Fibrosis.com Team Member