Sweat test resultHello guys,im new here and i would like to ask a question that really stresses me out! My little boy had a sweat test and the value was 9.36 my...Reactions 0 reactions Comments1 repliesDiagnosisTips & Advice
dealing with painHaving my form of CF has brought alot of problems , Pain has become even more so. I seem to be having more of it each day. I have taken...Reactions 0 reactions Comments5 repliesDiagnosis
Cystic fibrosis adult onset?Hi everyone 🙋🏻♀️just a quick introduction. I am 47 years old and live in the Netherlands. I have severe intestinal complaints and therefore had a colonoscopy, in addition to active...Reactions 0 reactions Comments3 repliesDiagnosisGI Symptoms
Atypical CFHello, Atypical Cystic Fibrosis... I wonder if anyone can help please. I am 46 years old I have had bronchiectasis diagnosed in 2008 by HRCT after suffering symptoms all my...Reactions 0 reactions Comments4 repliesDiagnosisSymptoms
New diagnosis / Any information / KaftrioHi, my partner and I have just had our first child, (a little boy) and unfortunately he's been diagnosed with CF. He had meconium ileus at birth, very low enzyme...Reactions 0 reactions Comments1 repliesTrikaftaCopingDiagnosis
coping with CF As my CF advances, I notice my limitations. My breathing has become much harder. I now have to use oxygen more often. I am notcing more pain in between my...Reactions 0 reactions Comments1 repliesDiagnosisCoping
CF patient writing articles about living with chronic illness, want your insightHello! I am a 26-year-old CF patient, and I am considering writing a series of articles about the experience of those living with chronic or terminal conditions. I think that...Reactions 0 reactions Comments1 repliesDiagnosisAwarenessMental Health
India lacks facilities , I'd like helpHi everyone, this is my first time writing on a community forum. I'm vandana , from india. 18 and diagnosed with CF 6ish years ago. I lost my brother to...Reactions 0 reactions Comments2 repliesDiagnosis
Does My Husband Have Atypical CF?Does anyone have any experience with atypical cystic fibrosis diagnosed in their late 20s? My husband was recently diagnosed. He has cbavd, major polyp sinus issues (two sinus surgeries in...Reactions 0 reactions Comments0 repliesCaregivingDiagnosis
