Help. Possible adult Cystic Fibrosis Hello?...Reactions 0 reactions Comments2 repliesAwarenessDiagnosisDiet & Nutrition
Carrier plus allele - what am I called?Hi all - I hope this question isn’t too obvious. Searching has failed me. I’m a CF carrier with one full CFTR gene, but my second gene has an allele...Reactions 0 reactions Comments1 repliesDiagnosis
Blood testsHello so I have to do some blood tests. Long story short, I went to go take my blood tests, and the phlebotomists say they are having trouble finding blood...Reactions 0 reactions Comments0 repliesDiagnosisSymptomsTips & Advice
Sweat test resultHello guys,im new here and i would like to ask a question that really stresses me out! My little boy had a sweat test and the value was 9.36 my...Reactions 0 reactions Comments1 repliesDiagnosisTips & Advice
dealing with painHaving my form of CF has brought alot of problems , Pain has become even more so. I seem to be having more of it each day. I have taken...Reactions 0 reactions Comments5 repliesDiagnosis
Cystic fibrosis adult onset?Hi everyone 🙋🏻♀️just a quick introduction. I am 47 years old and live in the Netherlands. I have severe intestinal complaints and therefore had a colonoscopy, in addition to active...Reactions 0 reactions Comments3 repliesDiagnosisGI Symptoms
Atypical CFHello, Atypical Cystic Fibrosis... I wonder if anyone can help please. I am 46 years old I have had bronchiectasis diagnosed in 2008 by HRCT after suffering symptoms all my...Reactions 0 reactions Comments4 repliesDiagnosisSymptoms
New diagnosis / Any information / KaftrioHi, my partner and I have just had our first child, (a little boy) and unfortunately he's been diagnosed with CF. He had meconium ileus at birth, very low enzyme...Reactions 0 reactions Comments1 repliesTrikaftaCopingDiagnosis
coping with CF As my CF advances, I notice my limitations. My breathing has become much harder. I now have to use oxygen more often. I am notcing more pain in between my...Reactions 0 reactions Comments1 repliesDiagnosisCoping
CF patient writing articles about living with chronic illness, want your insightHello! I am a 26-year-old CF patient, and I am considering writing a series of articles about the experience of those living with chronic or terminal conditions. I think that...Reactions 0 reactions Comments1 repliesDiagnosisAwarenessMental Health
