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Forums

Read conversations, start a discussion, and connect with others about cystic fibrosis.

Newbie´s questions

Hello good day,im newbie! Do you have pain in your neck or near your neck? Which doctor diagnosed the disease? Did your pancreas come out good or bad on the...

Best centers for Atypical Adult Onset Diagnosis

I am a 50 year old with gradual symptoms of CF and a genetic sequencing test showing 2 extremely rare genes that could be indicative of CF, but requires further...

weight loss

15 year old all of sudden started lossing weight never loss weight before weights 153 was weighting 159...

How Old Were You When You Were Diagnosed?

I'm just curious because I was diagnosed when I was only 6 months old, but my brother was diagnosed at 4. So, when were you (or your loved one) diagnosed...

Help. Possible adult Cystic Fibrosis

Carrier plus allele - what am I called?

Hi all - I hope this question isn’t too obvious. Searching has failed me. I’m a CF carrier with one full CFTR gene, but my second gene has an allele...

Blood tests

Hello so I have to do some blood tests. Long story short, I went to go take my blood tests, and the phlebotomists say they are having trouble finding blood...

Sweat test result

Hello guys,im new here and i would like to ask a question that really stresses me out! My little boy had a sweat test and the value was 9.36 my...

dealing with pain

Having my form of CF has brought alot of problems , Pain has become even more so. I seem to be having more of it each day. I have taken...

Cystic fibrosis adult onset?

Hi everyone 🙋🏻‍♀️just a quick introduction. I am 47 years old and live in the Netherlands. I have severe intestinal complaints and therefore had a colonoscopy, in addition to active...

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