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Read conversations, start a discussion, and connect with others about cystic fibrosis.

Miralax gummies

Anybody tried these in place of Miralax powder?...

Seeking Urgent Help and Guidance for My Brother

My younger brother, Nikunj, who is 18 years old, has been battling cystic fibrosis (CF) since he was diagnosed at the age of 9. His genetic mutation is R560S. Over...

How many of you do IV antibiotics at home?

It’s a subject that differs with a lot of patients especially those living in the states when it comes to insurance (I’m in the UK) but I’m able to do...

Tilting therapy bed for physio for CF

I have a tilting bed supplied specifically for CF physio, but my boys only used it twice as they preferred the wedge on the floor. If anyone would like it...

Bronchoscopy--what to expect?

Hi everyone, I am having a bronchoscopy done to get a better idea of what is happening in my lungs following a CT scan. Have you had one done? What...

Meds

Hi all. I found out Thursday my LG has cf. She is 6 weeks old. We now have her creon, parafit we are waiting on and her flucloxicillin. Any tips...

SmartVest®️ | JAN 20, 2023 | HITE1955 With: ‘ DOUG ‘ INOGEN ONE G5 | IO- 500

What does AnyOne THINK of the SmartVest®️? Or has AnyOne TRIED the SmartVest ®️ ? Would AnyOne think the SmartVest ®️, would be GREAT for AnyOne with ASTHMA, CHRONIC BRONCHITIS...

Winter with CF

When the temperatures fall, it's not uncommon for anxiety to rise in people with CF. What changes do you make to you or your family's routines in the colder months?...

Muscular stiffness: What is, Causes, Diagnosed & Treatment

Muscle stiffness refers to the sense of tight muscles, which often causes discomfort and makes movement difficult. Muscle stiffness may result from misuse of a specific muscle, or it may...

Hospital admissions & fed up

Is there any coping strategies people use whilst in a state of depression due to our CF bringing us down I mean I have my good days and laugh and...

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