Active todayMiralax gummies Anybody tried these in place of Miralax powder?...Reactions0reactionsComments1 repliesGI SymptomsDiet & NutritionDaily Treatment
Seeking Urgent Help and Guidance for My BrotherMy younger brother, Nikunj, who is 18 years old, has been battling cystic fibrosis (CF) since he was diagnosed at the age of 9. His genetic mutation is R560S. Over...Reactions0reactionsComments1 repliesLung TransplantTips & AdviceDaily Treatment
How many of you do IV antibiotics at home?It’s a subject that differs with a lot of patients especially those living in the states when it comes to insurance (I’m in the UK) but I’m able to do...Reactions0reactionsComments0 repliesPalliative CarePortsDaily Treatment
Tilting therapy bed for physio for CFI have a tilting bed supplied specifically for CF physio, but my boys only used it twice as they preferred the wedge on the floor. If anyone would like it...Reactions0reactionsComments0 repliesDaily Treatment
Bronchoscopy--what to expect?Hi everyone, I am having a bronchoscopy done to get a better idea of what is happening in my lungs following a CT scan. Have you had one done? What...Reactions0reactionsComments1 repliesSymptomsDaily Treatment
MedsHi all. I found out Thursday my LG has cf. She is 6 weeks old. We now have her creon, parafit we are waiting on and her flucloxicillin. Any tips...Reactions0reactionsComments1 repliesDaily Treatment
SmartVest®️ | JAN 20, 2023 | HITE1955 With: ‘ DOUG ‘ INOGEN ONE G5 | IO- 500What does AnyOne THINK of the SmartVest®️? Or has AnyOne TRIED the SmartVest ®️ ? Would AnyOne think the SmartVest ®️, would be GREAT for AnyOne with ASTHMA, CHRONIC BRONCHITIS...Reactions0reactionsComments3 repliesDaily Treatment
Winter with CFWhen the temperatures fall, it's not uncommon for anxiety to rise in people with CF. What changes do you make to you or your family's routines in the colder months?...Reactions0reactionsComments4 repliesDaily TreatmentCopingWeather
Muscular stiffness: What is, Causes, Diagnosed & TreatmentMuscle stiffness refers to the sense of tight muscles, which often causes discomfort and makes movement difficult. Muscle stiffness may result from misuse of a specific muscle, or it may...Reactions0reactionsComments1 repliesDaily TreatmentHealthcare Team
Hospital admissions & fed up Is there any coping strategies people use whilst in a state of depression due to our CF bringing us down I mean I have my good days and laugh and...Reactions0reactionsComments8 repliesDepressionDaily TreatmentMental Health