Bronchoscopy--what to expect?Hi everyone, I am having a bronchoscopy done to get a better idea of what is happening in my lungs following a CT scan. Have you had one done? What...Reactions 0 reactions Comments1 repliesDaily TreatmentSymptoms
MedsHi all. I found out Thursday my LG has cf. She is 6 weeks old. We now have her creon, parafit we are waiting on and her flucloxicillin. Any tips...Reactions 0 reactions Comments1 repliesDaily Treatment
SmartVest®️ | JAN 20, 2023 | HITE1955 With: ‘ DOUG ‘ INOGEN ONE G5 | IO- 500What does AnyOne THINK of the SmartVest®️? Or has AnyOne TRIED the SmartVest ®️ ? Would AnyOne think the SmartVest ®️, would be GREAT for AnyOne with ASTHMA, CHRONIC BRONCHITIS...Reactions 0 reactions Comments3 repliesDaily Treatment
Winter with CFWhen the temperatures fall, it's not uncommon for anxiety to rise in people with CF. What changes do you make to you or your family's routines in the colder months?...Reactions 0 reactions Comments4 repliesDaily TreatmentCopingWeather
Muscular stiffness: What is, Causes, Diagnosed & TreatmentMuscle stiffness refers to the sense of tight muscles, which often causes discomfort and makes movement difficult. Muscle stiffness may result from misuse of a specific muscle, or it may...Reactions 0 reactions Comments1 repliesDaily TreatmentHealthcare Team
Hospital admissions & fed up Is there any coping strategies people use whilst in a state of depression due to our CF bringing us down I mean I have my good days and laugh and...Reactions 0 reactions Comments8 repliesDaily TreatmentDepressionMental Health
Moving to the US with Cystic FibrosisHi, I am a 28 year old female from the UK hoping to move to Florida next year to be with my long term partner. I feel like a fish...Reactions 0 reactions Comments2 repliesDaily TreatmentCostHealthcare Team
Vibrating Mesh Nebulizers & Hypertonic Saline?Howdy. I've been trying to find info from CFers regarding using these vibrating mesh nebulizers with Hypertonic Saline (7%). Anyone use these or have knowledge on which ones work/don't work...Reactions 0 reactions Comments0 repliesDaily Treatment
Orkambi or Trikafta?Hello, My 14-year-old son has cystic fibrosis. Soon, in Romania, we will benefit from Orkambi and Trikafta medicines. From your experience, do we need to start with Orkambi and then...Reactions 0 reactions Comments2 repliesDaily TreatmentTrikaftaHealthcare Team
Kaftrio and pseudomonas Hello everyone. I hope all are keeping well. My son started kaftrio a month and a half ago today, he never had any 'purge' as they call it.... Where you...Reactions 0 reactions Comments1 repliesDaily Treatment
