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CF Treatment

Which treatments are you (or your child) taking on a day to day basis? (Remember, this is a place to talk about personal experiences, but we ask that you do not give medical advice.)

  1. Hi everyone, I am 30 with CF and CFRD and also on Trikafta. I do your typical airway clearance with albuterol, hypertonic saline, pulmozyme, cromolyn, and colistin as my inhaled antibiotic and my Monarch vest. I know a lot of people were able to cut down on meds after starting Trikafta. Has anyone kept everything the same? Wishing everyone well! Warmly, Janeil Team Member

    1. Hello everyone. I am 57 with a form of CF (bronchiectasis/ Cilla Dsykenesia. ) I use Albuterol (duo neb) 4x a day. Sodium chloride 2 x a day. budesonide 2 x a day. Nebulized ,. Followed with a vest treatment usually 4 x a day. I also use Actylcystenine to thin out thick mucous. sleep with a bi pap machine as well for sleep Apnea. Use Meropenum antibiotic by my port for 2 weeks, 3x a day for 2 weeks every eight hours for Psuedomonas. Nebulize Gentamycin 800mg 2 x a day every other 28 days for infection management

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