April 17, 2020
Managing a chronic illness can be a lot of work, but adding children to the mix makes it even harder. What is it like to be a parent with CF?
April 18, 2020
Being a parent with CF is very challenging! I’ve known my whole life that I wanted to be a mom. I had decent lung function when I became pregnant, but during and after pregnancy, I found my lung function hitting an all time low. I have not been able to get it back up, but I keep a strict treatment routine, exercise when I can and eat good to maintain my numbers. It’s been hard to keep up with a toddler, running around and such is short lived. I wouldn’t trade my beautiful daughter for the world! The best thing that has ever happened to me and she keeps me fighting to stay healthy, so I can watch her grow up!
April 20, 2020
How old is your little one? I'd love to hear more about her. Take care, Sarah, Cystic-Fibrosis.com Team Member
April 20, 2020
She is almost two now, beautiful, fun and smart little girl! My dream come true!
April 21, 2020
4 days ago
I can totally related your response. I also have a toddler, well I guess he's a preschooler now. I did great during pregnancy--my weight and pft went up! Afterwards, I definitely struggled until I started Trikafta which almost pushed the reset button. Now, I am 22 weeks pregnant with our Trikafta baby and not doing as well this pregnancy as my last. It can be so tough to be a parent, manage CF, and have enough time to focus on yourself. I agree that it's all worth it! It truly does push you to be a more dedicated patient. Have you been able to start trikafta? Warmly, Janeil cystic-fibrosis.com Team Member