If it wasn't for bad luck I'd have no luck at allCystic fibrosis is one of the most horrible illnesses a person can get. I have seen what it does and I will never forget it. My daughter has it she's...Reactions0reactionsComments27 repliesCopingCaregiving
when a cf child reaches 18 and transitions into being an adultMy husband and I would love to hear from parents/caregivers with a CF child transitioning into the adult world. We are nervous about all the changes we're facing. Insurance is...Reactions0reactionsComments1 repliesCaregiving
Let's Talk Food! Food is an essential part of life, but it can be a complicated subject when you have CF. What foods do you or your loved one eat most to get...Reactions0reactionsComments21 repliesCaregivingDiet & Nutrition
Co parentingDoes anyone have any advice on co parenting with a baby with cf? I think she’ll have to live mainly with me as I am her primary care giver anyways...Reactions0reactionsComments2 repliesCaregiving
Caregiver Month ForumWhat has been your proudest moment as a caregiver to a CF warrior?...Reactions0reactionsComments16 repliesCaregiving
FeaturedBeing a Parent with CFManaging a chronic illness can be a lot of work, but adding children to the mix makes it even harder. What is it like to be a parent with CF?...Reactions0reactionsComments8 repliesCaregiving
PneumoniaHello. I’m a caregiver for my husband who was hospitalized last week with pneumonia, but he has a new ‘symptom’ that hasn’t happened before - memory loss. They said it...Reactions0reactionsComments1 repliesCaregivingSymptoms
Cystic Fibrosis and Covid vaccine -15 year oldHello, I am new to this forum and needed an outlet for my queries. I am the stepmother to a 15 year old boy with cystic fibrosis. His maternal mother...Reactions0reactionsComments6 repliesAwarenessCaregiving
Getting sickMy son has cf and every time the doctors take him off antibiotics he winds up back in the hospital. Has this happened to anyone else? The doctors don’t know...Reactions0reactionsComments7 repliesDaily TreatmentCaregiving
catheter dressing recommendationHi all! As a caregiver, I had to do a lot of trial and error for medical supplies, especially catheter dressings. I came across this medical company based in Korea...Reactions0reactionsComments1 repliesCaregivingDaily TreatmentPICC Lines