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Read conversations, start a discussion, and connect with others about cystic fibrosis.

when a cf child reaches 18 and transitions into being an adult

My husband and I would love to hear from parents/caregivers with a CF child transitioning into the adult world. We are nervous about all the changes we're facing. Insurance is...

Let's Talk Food!

Food is an essential part of life, but it can be a complicated subject when you have CF. What foods do you or your loved one eat most to get...

Co parenting

Does anyone have any advice on co parenting with a baby with cf? I think she’ll have to live mainly with me as I am her primary care giver anyways...

Caregiver Month Forum

What has been your proudest moment as a caregiver to a CF warrior?...

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Being a Parent with CF

Managing a chronic illness can be a lot of work, but adding children to the mix makes it even harder. What is it like to be a parent with CF?...

Pneumonia

Hello. I’m a caregiver for my husband who was hospitalized last week with pneumonia, but he has a new ‘symptom’ that hasn’t happened before - memory loss. They said it...

Cystic Fibrosis and Covid vaccine -15 year old

Hello, I am new to this forum and needed an outlet for my queries. I am the stepmother to a 15 year old boy with cystic fibrosis. His maternal mother...

Getting sick

My son has cf and every time the doctors take him off antibiotics he winds up back in the hospital. Has this happened to anyone else? The doctors don’t know...

catheter dressing recommendation

Hi all! As a caregiver, I had to do a lot of trial and error for medical supplies, especially catheter dressings. I came across this medical company based in Korea...

Making treatments fun

Do you have any creative ways to make treatments feel more exciting and less scary for your child?...

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