Person in need
My name is Elizabeth, and I am the mother of a 10-year-old boy diagnosed with Cystic Fibrosis (CF). I reside in Cuba—a country where, regrettably, patients suffering from this disease lack access to the medications and essential supplies necessary for their treatment.
My son carries the F508del genetic mutation, inherited from both parents, and is currently colonized by bacteria such as *Pseudomonas* and *Staphylococcus*, according to his treating pediatrician. This situation makes the need for appropriate medications to control the disease and improve his quality of life all the more urgent.
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Hi Elizabeth
- thanks for reaching out. Out thoughts are with your family, and especially your son, in this difficult time. Unfortunately, our Community Rules do not allow for any form of solicitation or fundraising, including requests for supplies and medications. We appreciate your asking and refraining from posting it, and we wish you and your family all the best! I'm linking an article here that lists a number of resources that might be able to help you (I do not know if they operate outside the US). Perhaps they might be able to help you. While I ordinarily remove any posts with requests for solicitation, I will edit yours to remove the solicitation section, so you will be able to see my reply. Warmly, Kathy (Team member)
