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Read conversations, start a discussion, and connect with others about cystic fibrosis.

Hair loss

I'm a woman in my 40s with CF. I'm on a modulator. Recently I have started having my hair fall out. It's coming out in clumps and filling out my...

New to Trikafta-please respond

Hi. I just started taking Trikafta a week ago after the sickest year of my life. I started it while on levaquin and doxy. I culture pseudomonas and recently had...

Trikfta side effects

I’ve been on Trikfta since 2019 and I’ve developed cataracts on both eyes. I’m 41 years old which I was told this normally happens in children, adolescents, and young adults...

Trikafta? Need better I formation and diet for cystic fibrosis!

Hope to hear back!...

Trikafta coverage

Hi. I'm on Trikafta and since my job changed prescription plans, my Trikafta is a 4000.00 copay. I have good health insurance and had Benecard for my prescriptions and only...

Trikafta (Kaftrio) causing Bad Memory Loss?

Hi, I have been on Trikafta from June 2021. My lung function has went up 20%, and I generally feel a lot better. However my memory is starting to get...

My son with CF, CFRD, Neuropathy, and Liver Disease due to cf

My son was 6 months old dianosed with cf. Then the rest of the medical started. He is now 18 yrs old. On Trikafta since Nov 27, 2019. Since on...

Ivacaftor

Good evening. I am a 40 year old male with a mild form of c.f. I started Kaftrio 4 days ago. I have been told by my consultant I may...

Trikafta

Trikafta nearly killed me. Inside of 3 months I was in total liver failure. I was in and out of the hospital 5 times before going in and staying 42...

Featured

Trikafta side effects

I’m a 58 yr old female. I started Trikafta 10 months ago. It has helped diminished my cough completely but I’ve started with a lot of other symptoms. I have...

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