My son with CF, CFRD, Neuropathy, and Liver Disease due to cfMy son was 6 months old dianosed with cf. Then the rest of the medical started. He is now 18 yrs old. On Trikafta since Nov 27, 2019. Since on...Reactions 0 reactions Comments1 repliesTrikafta
Trikafta (Kaftrio) causing Bad Memory Loss?Hi, I have been on Trikafta from June 2021. My lung function has went up 20%, and I generally feel a lot better. However my memory is starting to get...Reactions 0 reactions Comments8 repliesTrikaftaSide EffectsTips & Advice
Ivacaftor Good evening. I am a 40 year old male with a mild form of c.f. I started Kaftrio 4 days ago. I have been told by my consultant I may...Reactions 0 reactions Comments1 repliesTrikafta
TrikaftaTrikafta nearly killed me. Inside of 3 months I was in total liver failure. I was in and out of the hospital 5 times before going in and staying 42...Reactions 0 reactions Comments2 repliesTrikaftaMental HealthSide Effects
FeaturedTrikafta side effectsI’m a 58 yr old female. I started Trikafta 10 months ago. It has helped diminished my cough completely but I’ve started with a lot of other symptoms. I have...Reactions 0 reactions Comments21 repliesTrikafta
Orkambi or Trikafta?Hello, My 14-year-old son has cystic fibrosis. Soon, in Romania, we will benefit from Orkambi and Trikafta medicines. From your experience, do we need to start with Orkambi and then...Reactions 0 reactions Comments2 repliesDaily TreatmentTrikaftaHealthcare Team
New diagnosis / Any information / KaftrioHi, my partner and I have just had our first child, (a little boy) and unfortunately he's been diagnosed with CF. He had meconium ileus at birth, very low enzyme...Reactions 0 reactions Comments1 repliesTrikaftaCopingDiagnosis
Trikafta and Brain fog/headachesI am 42yo and began trikafta 3 years ago while in the drug study. I felt amazing at first and bumped up my fev1 from 40's to 60's. I did...Reactions 0 reactions Comments1 repliesTrikafta
I have CF and am pregnant Let’s share our experiences that can be uniquely nuanced because of managing CF and also new symptoms and changes with pregnancy...Reactions 0 reactions Comments8 repliesTrikaftaSymptomsTips & Advice
Trikafta? Need better I formation and diet for cystic fibrosis!Hope to hear back...Reactions 0 reactions Comments3 repliesTrikafta
