Resources for Financial Support for Cystic Fibrosis PatientsCystic fibrosis costs a lot, it adds up between the medication, hospitalizations, surgeries, and time off work. I know my family and I have experienced quite a lot of financial... By Cheriz K.5 min readBookmark for laterReactions 0 reactions Comments0 comments
Waiting for TrikaftaIt’s been several weeks since the FDA announced the approval of Trikafta for use in 90% of cystic fibrosis patients. This news came as somewhat of a shock to me... By Kynsie Riedel3 min readBookmark for laterReactions 0 reactions Comments0 comments
The Season of Giving Back – #GivingTuesdayAs we enter into the holiday season, and as I’ve gotten older, I’ve realized this time is more about giving than receiving. It brings me so much joy to see... By Megan Barlow3 min readBookmark for laterReactions 0 reactions Comments0 comments
Family Activities with CF Involve More PlanningEvery year before winter hits, we like to enjoy the outdoors and go out with a BANG! My husband and I foster children, so depending on number, age, and interest... By Cheriz K.3 min readBookmark for laterReactions 0 reactions Comments0 comments
Musical Chest PT for CF, or How I Bond with My SonAlthough not by design, music – singing, really – has played a big role in my relationship with my children. Singing or playing music for children to soothe and connect... By Steve Wilson3 min readBookmark for laterReactions 0 reactions Comments1 comments
How Exercise Kept Me Out of the Hospital Until I Was 26I have always been active. Since I could remember, I’ve been involved in all different sports, by recommendation of my doctor from an early age. I wasn’t diagnosed with CF... By Megan Barlow3 min readBookmark for laterReactions 0 reactions Comments0 comments
Review of the Philips Innospire Go NebulizerThe Philips Innospire Go portable mesh nebulizer has opened up a whole new world for me when it comes to doing my treatments on the go. With the Monarch Vest... By Lauren Weeks3 min readBookmark for laterReactions 0 reactions Comments9 comments
My Life with Cystic FibrosisMy name is Craig Konowal, and I was diagnosed with CF at birth. I was able to get an early diagnosis because I had an older sister who passed away... By Craig Konowal4 min readBookmark for laterReactions 0 reactions Comments0 comments
Wife to Man With CFI don't have CF but I'm married to a man with it. He was born with it, he has Delta F508. Thankfully, he's healthier than most but he also doesn't... By hiswife131 min readBookmark for laterReactions 0 reactions Comments4 comments
Sorting Out Hopes and DreamsRoughly 10 years ago, while at a CF Foundation event during the “My Dream” campaign, a writer for the Foundation asked me a basic but poignant question which, quite simply... By Noreen Tarletsky3 min readBookmark for laterReactions 0 reactions Comments0 comments
CF Friendships Are Worth the CostBrandon was my first close CF friend. We met decades ago during a hospital stay as teenagers, before the medical community understood the risks of cross-infection among CF patients. Brandon... By J. Kaye Riley2 min readBookmark for laterReactions 0 reactions Comments0 comments
Part One: Growing Up in the HospitalI grew up being hospitalized 2-4 times a year. Typically, it was for a lung infection or gastrointestinal issue. Hospital stays lasted between 14-30 days normally, so it’s no wonder... By Cheriz K.4 min readBookmark for laterReactions 0 reactions Comments2 comments
My Morning Routine - Investing in My Health & MyselfBeing a mother is a full-time job. Managing cystic fibrosis is a full-time job. Adding those two things together felt, at times, impossible. In the early days of motherhood, I... By Kynsie Riedel6 min readBookmark for laterReactions 0 reactions Comments0 comments
Tips for Managing Pre-Clinic Day AnxietyI am writing this article now in the wake of having my clinic visit a few days ago. And, let me preface by saying I had a GOOD visit (which... By Megan Barlow4 min readBookmark for laterReactions 0 reactions Comments0 comments
Work and Cystic Fibrosis“Sounds like someone has a case of the Mondays,” is a fairly well-known phrase, especially in the working world. It’s an acknowledgment of the fact that weekends are too short... By Kenny Boutot4 min readBookmark for laterReactions 0 reactions Comments0 comments
Tales From A Young Looking 29-Year-OldDue to not being diagnosed until I was 3 and the ensuing malnutrition that comes along with a lifetime of cystic fibrosis (and some “shorty” family genes), I stand at... By Lauren Weeks4 min readBookmark for laterReactions 0 reactions Comments1 comments
Can I Keep Working? When It's Time To Take A Step BackI’m a very motivated individual. I always ran for every board, committee, or leadership position I could. I starting working young. I had always wanted a career in real estate... By Cheriz K.3 min readBookmark for laterReactions 0 reactions Comments0 comments
A Fall Preparation Guide: Entering the Season With an Attitude of GratitudeI’ll admit it. Fall has never been my favorite season. The falling leaves carry with them a very heavy weight for me. The end of summer typically means the end... By Kynsie Riedel6 min readBookmark for laterReactions 0 reactions Comments1 comments
Using My Treatment Time for GoodSeventy-five minutes a day lost. That is how I felt about my treatment time for most of my life. Yes, I would catch up on my shows, or watch Netflix... By Megan Barlow3 min readBookmark for laterReactions 0 reactions Comments0 comments
My Journey to Motherhood: A Mom with Cystic FibrosisAll my life I knew I’d be unable to have children biologically, but I never saw that as an obstacle to becoming a mother. I knew from a fairly young... By Cheriz K.3 min readBookmark for laterReactions 0 reactions Comments0 comments