Thousands of Feet ApartHaving cystic fibrosis means that I cannot be within 6 feet of another CFer. As I write this, it’s still hard for me to come to terms with it. I...reactionscomments
Understanding CFWe asked our advocates, "How old were you when you felt you truly understood what cystic fibrosis is? How did you feel at that time?" They had some interesting responses...reactionscomments
Ten Ways to Support a Loved One With CFSupporting someone you love with cystic fibrosis is a great way to show how much you care and value their experience living with a chronic illness. Support from friends and...reactionscomments
Embracing Changes in CF ManagementIn my last article, I discussed making accommodations for the changes CF imposes on me and many other patients. However, those aren’t the only developments we experience in life with...reactionscomments
Rare In America: What's That?The "In America survey" is now closed. We know that cystic fibrosis (CF) is more than a lung disease. It affects the whole body - gastrointestinal system, sinuses, pancreas, liver...reactionscomments
Tips To Gain And Maintain WeightLooking from the outside-in, many people might assume being chronically thin is a positive side effect of cystic fibrosis. That’s what everybody wants, isn’t it? Being effortlessly thin sounds wonderful...reactionscomments
Where Do I Fit In?Having cystic fibrosis is challenging enough. It’s a daily cycle of medications and finding a balance in the day of when to do treatments and so forth. I am not...reactionscomments
My Moment Of RebellionAs long as I can remember, I have always done my best to please those influential people in my life: my parents, my teachers, and my doctor. I always strive...reactions2comments
Cystic Fibrosis (CF) Care TeamManaging treatment for cystic fibrosis (CF) is a team effort. Given the many ways living with CF can impact a person, it takes a variety of specialists to keep you...reactionscomments
Disclosing CF to Someone New Doesn't Have to Be So ComplicatedHave you ever met someone new, and instantly wondered how you would tell them you have cystic fibrosis? It’s the same plotline each time: the excitement of a new relationship...reactionscomments
Coronavirus: Be Calm And AwareThe coronavirus has been on the news more times than I can count and it’s inducing a wave of panic across the world. People are nervous and scared - and...reactionscomments
Dealing With GuiltHaving cystic fibrosis means dealing with hard concepts and lots of emotions. Feeling sick, scared, angry, hurt, sad, grieving those we lost, and so much more. One of the hardest...reactionscomments
CF Diet ManagementWe asked our advocates, "What practices have you applied to CF diet management?" Here's what we heard! Response from Cheriz K I focus on gaining weight by making sure I...reactionscomments
Not So MotherhoodOver the course of my life, I’ve noticed changes to myself that - frankly - I’ve ignored. These are changes due to my cystic fibrosis that I chose to place...reactionscomments
Connecting With CF PeersWe asked our advocates, "What methods do you use to connect with your CF peers? How do you feel about these methods?" Here's what they wanted to share with you...reactionscomments
Time Traveling With TrikaftaMuch like the entire cystic fibrosis community, I was eagerly awaiting my arrival of the recently approved CFTR modulator: Trikafta. Following the published research, community hype and amazing progress stories...reactions1comment
Tips for Overcoming DehydrationFor those of us with cystic fibrosis, our bodies put us through a lot every day because of those two mutated CFTR genes. Why is it that something that seems...reactionscomments
My Port Gives Me a Piece of FreedomThere are moments throughout my day living with cystic fibrosis that I sit back and watch my freedom slip away. Like water running through my fingers, there’s no stopping the...reactionscomments
What Lifestyle Changes Has Cystic Fibrosis Caused?We asked our advocates, "What changes have you had to make to your life/lifestyle because of cystic fibrosis?" Here's what they wanted to share with you. Response from Cheriz K...reactionscomments
The Other 10 PercentWhen I learned about Trikafta, I was thrilled and moved to tears. It was a bittersweet moment for me. I was happy beyond belief for the CF community. I was...reactionscomments
