Living

Looking from the outside-in, many people might assume being chronically thin is a positive side effect of cystic fibrosis. That’s what everybody wants, isn’t it? Being effortlessly thin sounds wonderful...

Having cystic fibrosis is challenging enough. It’s a daily cycle of medications and finding a balance in the day of when to do treatments and so forth. I am not...

As long as I can remember, I have always done my best to please those influential people in my life: my parents, my teachers, and my doctor. I always strive...

Managing treatment for cystic fibrosis (CF) is a team effort. Given the many ways living with CF can impact a person, it takes a variety of specialists to keep you...

Have you ever met someone new, and instantly wondered how you would tell them you have cystic fibrosis? It’s the same plotline each time: the excitement of a new relationship...

The coronavirus has been on the news more times than I can count and it’s inducing a wave of panic across the world. People are nervous and scared - and...

Having cystic fibrosis means dealing with hard concepts and lots of emotions. Feeling sick, scared, angry, hurt, sad, grieving those we lost, and so much more. One of the hardest...

We asked our advocates, "What practices have you applied to CF diet management?" Here's what we heard! Response from Cheriz K I focus on gaining weight by making sure I...

Over the course of my life, I’ve noticed changes to myself that - frankly - I’ve ignored. These are changes due to my cystic fibrosis that I chose to place...

We asked our advocates, "What methods do you use to connect with your CF peers? How do you feel about these methods?" Here's what they wanted to share with you...

Much like the entire cystic fibrosis community, I was eagerly awaiting my arrival of the recently approved CFTR modulator: Trikafta. Following the published research, community hype and amazing progress stories...

For those of us with cystic fibrosis, our bodies put us through a lot every day because of those two mutated CFTR genes. Why is it that something that seems...

There are moments throughout my day living with cystic fibrosis that I sit back and watch my freedom slip away. Like water running through my fingers, there’s no stopping the...

We asked our advocates, "What changes have you had to make to your life/lifestyle because of cystic fibrosis?" Here's what they wanted to share with you. Response from Cheriz K...

When I learned about Trikafta, I was thrilled and moved to tears. It was a bittersweet moment for me. I was happy beyond belief for the CF community. I was...

Brrrrrr. It’s freezing outside. Whenever the winter season comes around, I think why in the world do I not live in a warmer climate? I don’t like the cold and it...

Having a plan in case of an emergency or natural disaster is important and a good idea for anyone, but especially those with chronic health conditions, including CF. If you...

The other day, a small card was left on my windshield at a local shopping plaza. It read, “Hey idiot! You absolutely suck at parking! Learn how to drive you...

When people hear me say that I have cystic fibrosis they usually say “oh that’s a lung disease, right?”  Which is true. CF very much affects the lungs, with lung...

While waiting to begin Trikafta, my heart has felt a little heavy, mainly for reasons that I can’t explain. I think part of it is that I don’t want to...