What to Do after Job LossMore and more people with cystic fibrosis (CF) are working. In fact, there are more CF patients in employment than ever before...reactionscomments
When Smoke Wreaks HavocWhen we started Margo’s last week of kindergarten, I didn’t expect anything out of the ordinary to happen. I certainly didn’t expect...reactions2comments
Transitioning from Pediatric to Adult CF CareAs an adolescent with cystic fibrosis (CF), I remember sensing a dark cloud over my impending transition from pediatric to adult CF...reactionscomments
Ring, Ring, Ring! Hello? It's Your CF Ears CallingHave you ever heard that curious folklore that says when your ears ring it means someone must be talking about you? I...reactionscomments
Morning RoutinesIn a previous article I wrote, I talked about how to get better sleep. Getting quality sleep can sometimes be difficult when...reactionscomments
How I Keep My Medication OrganizedSometimes the most useful guidance to help make a situation more efficient is the most obvious. We get so stuck in our...reactionscomments
Ask the Health Leaders: Grief in the CF CommunityPeople with cystic fibrosis (CF) often deal with grief in the CF community. We asked the CF Health Leaders what their experiences...reactionscomments
What It's Like Dating With Cystic FibrosisDating when you have cystic fibrosis (CF) can be a lot of things. It can be hard, frustrating, tiresome, and overwhelming. But...reactionscomments
Micro Habits and Small GoalsMy husband and I went to our local mega-store the other day. Think Costco’s or Sam’s and that is where we were...reactionscomments
A Big StepRecently I did something with my kids for the first time that previously, I didn’t think would be possible. I took them...reactionscomments
Letting Yourself Be LovedI’ve been doing a lot of inner work the past few weeks. I’ve spent so much time focusing on my physical health...reactionscomments
Tips for Employment with Cystic FibrosisAs Cystic Fibrosis patients continue to age, it is important to consider what types of jobs and careers would suit them. With...reactions2comments
My Rare Cystic Fibrosis Diagnosis StoryGrowing up with a rare disease, I didn’t realize how truly special I was. The novelty of my existence and the chance...reactionscomments
The Many Colors of Cystic Fibrosis: MetallicInspired by the song “Joseph’s Coat” from Joseph and the Technicolor Dreamcoat, I was reminded to explore colors such as silver, gold...reactionscomments
Preparing for TrikaftaWith the FDA approval of Trikafta for kids 2-5 years old, our daughter will be starting the medication earlier than expected. She...reactions2comments
Hospitalization Creature ComfortsHave you ever heard of creature comforts? I’ve listened to this saying occasionally. Creature comfort is something that helps people feel physical...reactionscomments
Dealing with typical illnesses with my CF-erA few months ago, we went on a family vacation to the beach. Because it was early April, I figured the typical...reactionscomments
A Letter to My Morning LungsDear Morning Lungs, I’m writing to tell you that you’re doing your best. I don’t blame you for your sluggish mood every...reactionscomments
In Sickness and in Health: Telling my Partner I have CFI have lived with cystic fibrosis (CF) my entire life, I know it like the back of my hand. With CF being...reactions5comments
30 Year WaitHello all. This is my story. I was really let down medically. 30 years ago, when I was 7 months pregnant with...reactionscomments
