Wife to Man With CFI don't have CF but I'm married to a man with it. He was born with it, he has Delta F508. Thankfully, he's healthier than most but he also doesn't...reactions4comments
Sorting Out Hopes and DreamsRoughly 10 years ago, while at a CF Foundation event during the “My Dream” campaign, a writer for the Foundation asked me a basic but poignant question which, quite simply...reactionscomments
CF Friendships Are Worth the CostBrandon was my first close CF friend. We met decades ago during a hospital stay as teenagers, before the medical community understood the risks of cross-infection among CF patients. Brandon...reactionscomments
Part One: Growing Up in the HospitalI grew up being hospitalized 2-4 times a year. Typically, it was for a lung infection or gastrointestinal issue. Hospital stays lasted between 14-30 days normally, so it’s no wonder...reactions2comments
My Morning Routine - Investing in My Health & MyselfBeing a mother is a full-time job. Managing cystic fibrosis is a full-time job. Adding those two things together felt, at times, impossible. In the early days of motherhood, I...reactionscomments
Tips for Managing Pre-Clinic Day AnxietyI am writing this article now in the wake of having my clinic visit a few days ago. And, let me preface by saying I had a GOOD visit (which...reactionscomments
Work and Cystic Fibrosis“Sounds like someone has a case of the Mondays,” is a fairly well-known phrase, especially in the working world. It’s an acknowledgment of the fact that weekends are too short...reactionscomments
Tales From A Young Looking 29-Year-OldDue to not being diagnosed until I was 3 and the ensuing malnutrition that comes along with a lifetime of cystic fibrosis (and some “shorty” family genes), I stand at...reactions1comment
Can I Keep Working? When It's Time To Take A Step BackI’m a very motivated individual. I always ran for every board, committee, or leadership position I could. I starting working young. I had always wanted a career in real estate...reactionscomments
A Fall Preparation Guide: Entering the Season With an Attitude of GratitudeI’ll admit it. Fall has never been my favorite season. The falling leaves carry with them a very heavy weight for me. The end of summer typically means the end...reactions1comment
Using My Treatment Time for GoodSeventy-five minutes a day lost. That is how I felt about my treatment time for most of my life. Yes, I would catch up on my shows, or watch Netflix...reactionscomments
My Journey to Motherhood: A Mom with Cystic FibrosisAll my life I knew I’d be unable to have children biologically, but I never saw that as an obstacle to becoming a mother. I knew from a fairly young...reactionscomments
Part Two: Preparing for the HospitalIf only “hospital knowledge” could be used on my resume. I have cystic fibrosis and spent a lot of time growing up in the hospital. As a child, I’d spend...reactionscomments
Travel and Cystic FibrosisTraveling with cystic fibrosis can be challenging at times. However, CF is manageable with the right preparation and precautions. Although it may seem like a lot more work to travel...reactionscomments
Navigating Weather With Cystic FibrosisJust as each individual’s journey with cystic fibrosis (CF) can vary, so can their response to different environmental factors. Some may enjoy certain seasons or weather, while others may find...reactions2comments
