Myths & Facts About Living WillsA living will is known by several other names, including advanced directive, healthcare declaration, medical directive, and many more. There is often...reactionscomments
Things Not To Say To Someone With CFIt seems that many people with CF know someone who hasn't learned the rule: “If you cannot say anything nice, do not...reactionscomments
How Technology Brings Both Convenience and Confusion: Results of the Connected Health SurveySometimes, it feels like we are surrounded by technology. Apps, devices, trackers, and gadgets are everywhere! In this digital age, though, everyone...reactionscomments
We Will Always Celebrate CF Awareness MonthHappy Cystic Fibrosis Awareness Month! It’s a special month for the CF community filled with advocacy and spotlighting our experiences. Although CF...reactionscomments
Looking For Answers To Chronic Pain: Part 1There’s a reason why when our bodies are experiencing pain we try to make it go away--ice, Tylenol, warm baths, hugs, and...reactionscomments
5 Helpful Tips for CaregiversReceiving a cystic fibrosis diagnosis can be a life-altering experience, not only for the person with the diagnosis, but also for the...reactionscomments
Parenting While Managing A Chronic IllnessWhether or not you have a child, most people would agree that parenting is hard. Although there is no right or wrong...reactions2comments
Cystic Fibrosis Unsolicited AdviceLiving with CF can be challenging, and it certainly is not made any easier by all the unsolicited advice dished up by...reactions2comments
Growing Into The Patient I Never Thought I Would BeChronic illness requires a lot from a person. In CF, it takes a lot away from a person at a young, fragile...reactionscomments
Dietary Concerns and the Non-CF SiblingIn our home, we are a home divided. We have fruit and vegetables and waffles and snack cakes. Anything my son wants...reactions1comment
It's The Most Stressful Time Of The Year: Open EnrollmentThe end of the year is always a stressful time in our household--and not because of reasons you might assume. It’s not...reactionscomments
Take the Connected Health Survey!The Connected Health Survey is now closed. Thank you for your interest!In the digital age, there are so many devices, websites, and...reactionscomments
Tips for Overcoming DehydrationFor those of us with cystic fibrosis, our bodies put us through a lot every day because of those two mutated CFTR...reactionscomments
How to Monitor Your Health with At-Home DevicesAt-home monitoring can help you better manage chronic health conditions. It can also aid in your recovery after medical procedures. Using this...reactionscomments
Privacy Concerns When Going VirtualTelehealth has become a popular way to see a doctor. Today, you can get many health services remotely. And, some studies show...reactionscomments
His fight is my fightI met my boyfriend in college almost 2 years ago. I always wondered why he cleared his throat so often and why...reactions4comments
Friends for lifeI have CF and also grew up with a friend that has CF. We lived in a small town of about 2,400...reactionscomments
Where to Find Telehealth ServicesIt can be overwhelming to figure out how to find telehealth services, especially if you do not already have a doctor. But...reactionscomments
Preparing for a Virtual Visit with Your DoctorVisiting your doctor online is a great way to get healthcare if you are not able to go in person. You can...reactionscomments
Services You Can Get Through TelehealthTelehealth or virtual care can be used to access many different types of health services. To get started, talk to your doctor...reactionscomments