Articles

My favorite thing about having cystic fibrosis (CF) is that most often no one can actually tell that I have CF or rather, anything unique about me at all. I...

May is Cystic Fibrosis Awareness Month, and we are celebrating BFFs (best fibrosis friends) in the cystic fibrosis (CF) community! All month long we will be highlighting ways to safely...

The Distanced Dining Giveaway is now closed. Thank you for your interest!   It's Cystic Fibrosis (CF) Awareness Month, and we are celebrating BFFs (best fibrosis friends). Since friends that...

I do a lot of self-reflection humbly standing at my kitchen sink. Lost in the mundane task of dishwashing, I find it easy to process through my emotions–sloshing, scrubbing, and...

Sleeping has been a great difficulty since starting Trikafta. I am not alone, the Trikafta tribe are pretty much all in agreement on this one. Those peachy pills do not like...

Being a partner to someone who has cystic fibrosis (CF) can be hard. It can be exhausting, scary, and confusing. As someone with CF who has a partner, my husband...

An essential part of staying healthy with CF is the diet. Often CF patients are told to include high-fat, high-calorie foods. In my experience, this was due to the probability...

For the first time, many people with CF have been able to focus less on gaining and maintaining weight and more on living life. Finally, they can eat a normal...

I hear a lot about survivor's guilt as a cystic fibrosis (CF) patient. I’ve had moments in my life I feel it creeping up when others talk about struggles with...

Families have many dynamics. There is a dynamic between the parents and children. The children in a family have their own dynamic. And the parents have their own dynamic, too...

We all hear the physios harp on about exercise but sometimes it can be daunting thinking about where to start. It took me many years and the breakthrough of modulator...

A recent article in the New York Times Opinion written by Dr. Daniela J. Lamas, a pulmonologist in Boston, detailed the story of momentous change occurring in the cystic fibrosis...

About 1 in 4 American adults live with a disability. Many people living with a disability are able to work and do. For those with an invisible disability, the decision...

I love viewing my journey with cystic fibrosis (CF) through the lens of Joseph’s Technicolor Dreamcoat. If you’re unfamiliar with the biblical musical, just know that Joseph is gifted a...

Some of the fiercest people I know have CF. The strength, determination and sheer willpower to fight for another breath is formidable. To friends and family who don’t have the...

Getting a new medication prescribed can feel overwhelming. I was prescribed a new medication a few years ago. And this medication had very specific requirements and instructions. One of the...

I have CF. For most of my life, that has been public knowledge. I shared it with people nonchalantly, as I would my favorite food. It was so normalized to...

I have yet to meet a parent whose child has a perfectly balanced and healthy diet 24/7.  Sure, we would love that for our kids, but they also have minds...

Living with CF, I know pain–all kinds of different types, locations, and degrees of pain. Pain from lung infections and coughing, abdominal pain or “CF belly” pain, joint pain, and...

The 25th anniversary of my diagnosis. It crept up on me without my noticing. I was on a meeting a week or so ago discussing when we started showing symptoms...