The Different Mindsets of Coping with IllnessWhen living with a chronic illness, I find my mind drifting into various stages, emotions and feelings. I often get comments from people, praising my strength and positivity, solely for...Reactions0reactionsComments0 comments
My Needle Phobia Is Not A Fear Of NeedlesI had a very interesting conversation with one of my CF nurses the other day just as we were preparing for the dreaded monthly port flush. As I mentally psyched...Reactions0reactionsComments0 comments
Why Can Daily Tasks Feel Overwhelming?I sometimes feel overwhelmed with all the things I must do for my health. As soon as I finish one task there is another one waiting to be completed. On...Reactions0reactionsComments0 comments
CF Friendship: Interview With Kadeem and SarahAs Cystic Fibrosis (CF) Awareness Month comes to a close at the end of May, we wanted to end our month here at Cystic-Fibrosis.com by shining another light on CF...Reactions0reactionsComments0 comments
The Many Colors of Cystic Fibrosis: Orange (Part 2)Let's get back into cystic fibrosis (CF) and the color orange. In my last article, I discussed Halloween, cautious living, and medication. Let’s keep talking about the color orange. One...Reactions0reactionsComments0 comments
Saying Goodbye to a CF Support SystemTen years ago, my fiance and I adopted a fluffy dilute calico cat from a lady we met in a Target parking lot. She was beautiful with green eyes, gray...Reactions0reactionsComments2 comments
Virtual FundraisingIt’s almost that time of year where my city does cystic fibrosis (CF) walks to raise money and awareness for CF. Fundraising is my calling, I love it! I also...Reactions0reactionsComments0 comments
Stress LessContent warning: This article contains mention of thoughts of self-harm. I was involved in a study the past two weeks that involved me taking my blood pressure twice a day...Reactions0reactionsComments1 comments
Complicated Emotions With CFIn a previous article I wrote about the mixed feelings and confusing thoughts I have had since the modulators – Orkambi, Symdeko, and Trikafta – came out. I know that...Reactions0reactionsComments2 comments
Six Things You Don't Need to Apologize for with CFOnce upon a time, I apologized for being unreliable and someone once told me to stop apologizing. They said, “Your disease is unreliable, not you.” At the time, it was...Reactions0reactionsComments2 comments
A New Reality With CFEvery now and then I get to feeling down. Sometimes, small, and simple things can bring me down. For example, not being able to go out to dinner with a...Reactions0reactionsComments3 comments
A Look Back On My CF JourneyI figured, with it being Cystic Fibrosis (CF) Awareness Month, this was a great time to look back on my journey over the past year. So much has happened, I...Reactions0reactionsComments0 comments
Disability Visibility: The Super CF ChameleonMy favorite thing about having cystic fibrosis (CF) is that most often no one can actually tell that I have CF or rather, anything unique about me at all. I...Reactions0reactionsComments0 comments
2023 CF Awareness Month: BFFsMay is Cystic Fibrosis Awareness Month, and we are celebrating BFFs (best fibrosis friends) in the cystic fibrosis (CF) community! All month long we will be highlighting ways to safely...Reactions0reactionsComments0 comments
BFF Distanced Dining GiveawayThe Distanced Dining Giveaway is now closed. Thank you for your interest! It's Cystic Fibrosis (CF) Awareness Month, and we are celebrating BFFs (best fibrosis friends). Since friends that...Reactions0reactionsComments3 comments
Why I Sobbed Registering My Son For KindergartenI do a lot of self-reflection humbly standing at my kitchen sink. Lost in the mundane task of dishwashing, I find it easy to process through my emotions–sloshing, scrubbing, and...Reactions0reactionsComments0 comments
How I Am Sleeping Through the Trikafta InsomniaSleeping has been a great difficulty since starting Trikafta. I am not alone, the Trikafta tribe are pretty much all in agreement on this one. Those peachy pills do not like...Reactions0reactionsComments0 comments
CF and Partner PTSDBeing a partner to someone who has cystic fibrosis (CF) can be hard. It can be exhausting, scary, and confusing. As someone with CF who has a partner, my husband...Reactions0reactionsComments0 comments
CF and VeganismAn essential part of staying healthy with CF is the diet. Often CF patients are told to include high-fat, high-calorie foods. In my experience, this was due to the probability...Reactions0reactionsComments0 comments
Five Actions That Get in the Way of My AppetiteFor the first time, many people with CF have been able to focus less on gaining and maintaining weight and more on living life. Finally, they can eat a normal...Reactions0reactionsComments0 comments