Tips for Employment with Cystic FibrosisAs Cystic Fibrosis patients continue to age, it is important to consider what types of jobs and careers would suit them. With...reactions2comments
My Rare Cystic Fibrosis Diagnosis StoryGrowing up with a rare disease, I didn’t realize how truly special I was. The novelty of my existence and the chance...reactionscomments
Hospitalization Creature ComfortsHave you ever heard of creature comforts? I’ve listened to this saying occasionally. Creature comfort is something that helps people feel physical...reactionscomments
The Many Colors of Cystic Fibrosis: MetallicInspired by the song “Joseph’s Coat” from Joseph and the Technicolor Dreamcoat, I was reminded to explore colors such as silver, gold...reactionscomments
Depression and Anxiety in People Living With Cystic FibrosisLiving with cystic fibrosis (CF) can bring many challenges. While the physical symptoms of CF are often discussed, the toll that the...reactionscomments
Preparing for TrikaftaWith the FDA approval of Trikafta for kids 2-5 years old, our daughter will be starting the medication earlier than expected. She...reactions2comments
My Scars Are Proof I'm LuckyI used to joke that I was the board game “Operation” because my body was covered in scars. By age 18, I...reactionscomments
Household Chores to Skip With CFDust, fumes, mold, and bacteria, oh my! Our homes are filled with many irritants that can harm our respiratory systems. However, those...reactionscomments
The 2024 Social Health Awards ProgramEditorial Note: Nominations for 2024 are now closed. We are very excited to announce the launch of the 2024 Social Health Awards...reactionscomments
IV Antibiotics: Hospital or Home?A big box was dropped on my doorstep filled with the most unexciting gifts: IV antibiotics. After a small bout of hemoptysis...reactionscomments
What Is Distal Intestinal Obstructive Syndrome (DIOS)?Distal intestinal obstruction syndrome (DIOS) is a condition where the small intestines get blocked by thickened stool. About 15 percent of people...reactionscomments
How Can a Lung Transplant Affect Cystic Fibrosis Life Expectancy?Cystic fibrosis is a genetic disease that affects the lungs, pancreas, and other vital organs. The life expectancy of someone with CF...reactions2comments
Ten Surprising Facts About CFEven after living with CF for 31 years, it seems like everyday I learn something new about this disease. CF is such...reactions10comments
Why Are My Hands So Wrinkly?Everyone has experienced hand and feet wrinkling at some point in their life. When we are young, we quickly learn that if...reactions10comments
Health Risks For Cystic Fibrosis CarriersCystic fibrosis (CF) is a genetic disease caused by two mutated copies of a gene called the cystic fibrosis transmembrane conductance regulator...reactions5comments
The 6-Foot Rule for Cystic FibrosisIn early 2019, a movie began showing in theaters across the country called Five Feet Apart. The previews that aired on television...reactions6comments
What It Means To Be A CarrierCystic fibrosis (CF) is a hereditary disease, which means individuals inherit genes that cause CF. CF causes changes in bodily secretions, particularly...reactions13comments
Dealing with typical illnesses with my CF-erA few months ago, we went on a family vacation to the beach. Because it was early April, I figured the typical...reactionscomments
Parenting and FatigueBeing a parent is a tiring job, and often, life with a chronic illness often comes with fatigue. Both together can be...reactionscomments
Is CF A Secret?I have CF. For most of my life, that has been public knowledge. I shared it with people nonchalantly, as I would...reactionscomments
