A Letter to My Morning LungsDear Morning Lungs, I’m writing to tell you that you’re doing your best. I don’t blame you for your sluggish mood every...reactionscomments
A Letter to Myself During My Diagnosis From the FutureDear Little Girl on the Day of Your Diagnosis, Hey, there! It’s great to see you. You look so sweet and innocent...reactions4comments
Setting Boundaries For Your HealthI was talking to someone about relationships recently. More specifically, we were talking about how hard boundaries can be, but how they...reactionscomments
What Having A CF Flare Up Looks LikeSince modulators broke onto the scene for the cystic fibrosis (CF) community a few years back, having a flare up can sometimes...reactionscomments
In Sickness and in Health: Telling my Partner I have CFI have lived with cystic fibrosis (CF) my entire life, I know it like the back of my hand. With CF being...reactions5comments
Alternatives to ResolutionsIn a previous article, I wrote about the difference between New Year’s resolutions and goals. The month of January can bring on...reactionscomments
CF Friendship: Interview With Kadeem and SarahAs Cystic Fibrosis (CF) Awareness Month comes to a close at the end of May, we wanted to end our month here...reactionscomments
Best Friends With CFAs a CF patient, one of the most heartbreaking realities is you must stay at least six feet apart from other CFers. I...reactions2comments
Remembering Kadeem MorganWe are incredibly saddened to share that CysticFibrosis.com team member Kadeem Morgan passed away on June 27, 2023. Kadeem was a talented...reactionscomments
Ask the Health Leaders: More Than Our LungsA common misconception about cystic fibrosis is that it only impacts the lungs. We asked our Health Leaders what other parts of...reactions3comments
A Sniffle Away from Losing My MindThe unrelenting storm of cold and flu season has threatened to rock the boat. By boat–I mean me–a mom living with CF...reactionscomments
Life, Love, and LungsI recently rekindled a relationship that had ended some months before as I felt my life slowly falling apart. I received difficult...reactions2comments
Learning to Live with GriefGrief seems to go hand in hand with CF. It is impossible for sorrow not to rear its ugly head when battling...reactions1comment
Interview With Nicole Kohr, Author and CF AdvocateNicole Kohr is so many things; she is a daughter, an author, a comedian, a partner, a dog parent, a patient representative...reactions1comment
A Letter To A New CF MomDear New CF Mom, I noticed you and your child today at Great Strides. Your newborn was wearing the same purple CF...reactionscomments
Passport, Pills, Plan: The Ultimate CF Jet Setter GuidePlanning a weekend break, a long haul trip or just a family holiday has always been difficult with CF. After Covid, many...reactions2comments
Don't Let the Summer Sun Suck Your Fun: DehydrationWater is inherent to our wellbeing as humans. Staying hydrated is especially important when you have a genetic condition that affects the...reactionscomments
Tips for Summer Caregivers for Kiddos with CFSummer is here and that means your kiddos with CF are home for the next few months from school. Just when you...reactionscomments
Recognizing Caregiver BurnoutAs caregivers, we often get so caught up in the routines we have in place that we don’t realize just how much...reactions1comment
Ask the Health Leaders: Sharing Your StoryWe asked our health leaders: Do you feel that sharing your (or your loved ones) journey with CF has been healing? If...reactionscomments
