Articles

Painsomnia became more of an issue for me in my twenties when I felt it was a symptom often overlooked by CF doctors. I explicitly remember telling a ward physician...

I had cystic fibrosis (CF) exacerbations every other month for many years. The routine was pretty much the same. My doctors would tell me to call them if I felt...

Five years ago, when my daughter Caroline was two weeks old, she was diagnosed with cystic fibrosis (CF). Initially, we kept her diagnosis private, only telling close family members. This...

Receiving the gift of Trikafta didn’t feel like a cure, it felt more along the lines of a promise. It felt like it promised me a life back that I...

In late March 2020, I discovered two pieces of bad news. The initial transfer did not result in a pregnancy. I felt extremely disappointed and frustrated. There was so much happening...

Mornings are usually the most hectic time in our household. On top of getting ourselves up and ready for work, we also help the girls get dressed, fed, washed up...

Cystic fibrosis (CF) is caused by a defective protein. This protein affects how salt and water move in and out of cells. This leads to thickened mucus throughout the body...

Some things always go together, like cystic fibrosis (CF) and airway clearance. It’s no surprise that airway clearance is an important part of CF maintenance. For decades, most people with...

As a CF patient, one of the most heartbreaking realities is you must stay at least six feet apart from other CFers. I am willing to bet that 85% of us...

What did you do for Valentine's day? I feel like there are three groups of people when it comes to Valentine’s Day. Group one loves Valentine's Day. While group two thinks...

In my previous article, I explained why grey is an essential color in my journey with cystic fibrosis (CF). Back to the color grey. The grey awareness ribbon represents a...

Today, I want to talk to you about a few chores my husband does for me in light of having cystic fibrosis (CF). You might say that my husband and...

Here we are! We’ve arrived at the final stages of my IVF journey. As mentioned in my previous articles outlining our experience, the main reason we were doing IVF was...

Navigating the dating scene is hard. It was hard when our parents dated and when their parents dated. And it is still hard today. Now add in cystic fibrosis (CF)?...

Since modulators broke onto the scene for the cystic fibrosis (CF) community a few years back, having a flare up can sometimes seem a thing of the past. Which means...

My journey with cystic fibrosis (CF) has been very colorful. I’ve had to expel and capture my green, sticky mucus. I walked alongside the CF community at the Great Strides...

The range of topics and novel presentations at the 2022 North American Cystic Fibrosis Conference (NACFC) in Philadelphia, PA was impressive. I’m sure it was exciting for the in-person attendants...

Saying cystic fibrosis (CF) has its obstacles is an understatement. As if the lung infections, gastrointestinal issues, diabetes, and all the other countless issues with our body were not enough...

I look forward to the North American Cystic Fibrosis Conference (NACFC) every year. So much so that this year I devoted a previous article to the topics I hoped would...

In light of my birthday in January, I’ve been thinking a lot about getting older. Living with cystic fibrosis (CF) has definitely affected my feelings about aging, and not always...