Family DynamicsFamilies have many dynamics. There is a dynamic between the parents and children. The children in a family have their own dynamic. And the parents have their own dynamic, too... By Katelyn Harlow3 min readBookmark for laterReactions0reactionsComments3 comments
Creating A CF Exercise Regime That FitsWe all hear the physios harp on about exercise but sometimes it can be daunting thinking about where to start. It took me many years and the breakthrough of modulator... By Emma Boniface3 min readBookmark for laterReactions0reactionsComments0 comments
What it Feels Like to Be in the Transitional GenerationA recent article in the New York Times Opinion written by Dr. Daniela J. Lamas, a pulmonologist in Boston, detailed the story of momentous change occurring in the cystic fibrosis... By Janeil Whitworth3 min readBookmark for laterReactions0reactionsComments0 comments
Understanding Non-apparent Disabilities in the WorkplaceAbout 1 in 4 American adults live with a disability. Many people living with a disability are able to work and do. For those with an invisible disability, the decision... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
The Many Colors of Cystic Fibrosis: Orange (Part 1)I love viewing my journey with cystic fibrosis (CF) through the lens of Joseph’s Technicolor Dreamcoat. If you’re unfamiliar with the biblical musical, just know that Joseph is gifted a... By Nicole Kohr2 min readBookmark for laterReactions0reactionsComments0 comments
What It Means To Be A CF WarriorSome of the fiercest people I know have CF. The strength, determination and sheer willpower to fight for another breath is formidable. To friends and family who don’t have the... By Emma Boniface3 min readBookmark for laterReactions0reactionsComments0 comments
New CF Medicine StrugglesGetting a new medication prescribed can feel overwhelming. I was prescribed a new medication a few years ago. And this medication had very specific requirements and instructions. One of the... By Katelyn Harlow3 min readBookmark for laterReactions0reactionsComments0 comments
Is CF A Secret?I have CF. For most of my life, that has been public knowledge. I shared it with people nonchalantly, as I would my favorite food. It was so normalized to... By Mikayla Bianchin5 min readBookmark for laterReactions0reactionsComments0 comments
CF Snacks My Five Year Old LovesI have yet to meet a parent whose child has a perfectly balanced and healthy diet 24/7. Sure, we would love that for our kids, but they also have minds... By Holly Williams4 min readBookmark for laterReactions0reactionsComments0 comments
My CF Exacerbation Complication: AtelectasisLiving with CF, I know pain–all kinds of different types, locations, and degrees of pain. Pain from lung infections and coughing, abdominal pain or “CF belly” pain, joint pain, and... By Janeil Whitworth2 min readBookmark for laterReactions0reactionsComments0 comments
My 25-Year Anniversary of CF DiagnosisThe 25th anniversary of my diagnosis. It crept up on me without my noticing. I was on a meeting a week or so ago discussing when we started showing symptoms... By Jennifer Oramas3 min readBookmark for laterReactions0reactionsComments0 comments
Painsomnia: The Unspoken CF SymptomPainsomnia became more of an issue for me in my twenties when I felt it was a symptom often overlooked by CF doctors. I explicitly remember telling a ward physician... By Emma Boniface2 min readBookmark for laterReactions0reactionsComments0 comments
Getting Triggered By CF Medical TraumaI had cystic fibrosis (CF) exacerbations every other month for many years. The routine was pretty much the same. My doctors would tell me to call them if I felt... By Katelyn Harlow3 min readBookmark for laterReactions0reactionsComments0 comments
What to Say When Your Friend's Child is Diagnosed with CFFive years ago, when my daughter Caroline was two weeks old, she was diagnosed with cystic fibrosis (CF). Initially, we kept her diagnosis private, only telling close family members. This... By Holly Williams4 min readBookmark for laterReactions0reactionsComments0 comments
Post Trikafta Flare-UpsReceiving the gift of Trikafta didn’t feel like a cure, it felt more along the lines of a promise. It felt like it promised me a life back that I... By Mikayla Bianchin3 min readBookmark for laterReactions0reactionsComments0 comments
A Happy Ending: My IVF JourneyIn late March 2020, I discovered two pieces of bad news. The initial transfer did not result in a pregnancy. I felt extremely disappointed and frustrated. There was so much happening... By Meagan Brackeen3 min readBookmark for laterReactions0reactionsComments0 comments
Not Enough Hours in the DayMornings are usually the most hectic time in our household. On top of getting ourselves up and ready for work, we also help the girls get dressed, fed, washed up... By Meagan Brackeen3 min readBookmark for laterReactions0reactionsComments0 comments
Staphylococcus Aureus and Decreased Lung Function in Cystic FibrosisCystic fibrosis (CF) is caused by a defective protein. This protein affects how salt and water move in and out of cells. This leads to thickened mucus throughout the body... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
I Forgot My Treatments and I Am OKSome things always go together, like cystic fibrosis (CF) and airway clearance. It’s no surprise that airway clearance is an important part of CF maintenance. For decades, most people with... By Janeil Whitworth2 min readBookmark for laterReactions0reactionsComments0 comments
Best Friends With CFAs a CF patient, one of the most heartbreaking realities is you must stay at least six feet apart from other CFers. I am willing to bet that 85% of us... By Kadeem Morgan3 min readBookmark for laterReactions0reactionsComments2 comments