Articles

Growing up with a rare disease, I didn’t realize how truly special I was. The novelty of my existence and the chance match of my genetics was completely lost on...

Inspired by the song “Joseph’s Coat” from Joseph and the Technicolor Dreamcoat, I was reminded to explore colors such as silver, gold, and other metals. If I see a rusted...

With the FDA approval of Trikafta for kids 2-5 years old, our daughter will be starting the medication earlier than expected. She turns six in July so we were already...

Have you ever heard of creature comforts? I’ve listened to this saying occasionally. Creature comfort is something that helps people feel physical comfort. This can look like certain foods, specific...

A few months ago, we went on a family vacation to the beach. Because it was early April, I figured the typical winter cold and flu illnesses were no longer...

Dear Morning Lungs, I’m writing to tell you that you’re doing your best. I don’t blame you for your sluggish mood every morning. I am sluggish and tired too. It’s...

I have lived with cystic fibrosis (CF) my entire life, I know it like the back of my hand. With CF being a rare disease, there are still a lot...

In a previous article, I wrote about the difference between New Year’s resolutions and goals. The month of January can bring on a lot of emotions. For some people there...

We are incredibly saddened to share that CysticFibrosis.com team member Kadeem Morgan passed away on June 27, 2023. Kadeem was a talented musician and DJ who also went by the...

A common misconception about cystic fibrosis is that it only impacts the lungs. We asked our Health Leaders what other parts of their health are impacted by CF. Read on...

The unrelenting storm of cold and flu season has threatened to rock the boat. By boat–I mean me–a mom living with CF treading water. Tiny runny button noses and explosive...

I recently rekindled a relationship that had ended some months before as I felt my life slowly falling apart. I received difficult news at a doctor's appointment and felt overwhelmed...

Grief seems to go hand in hand with CF. It is impossible for sorrow not to rear its ugly head when battling a lifelong chronic illness... “chronic” stands for long-term...

Dear New CF Mom, I noticed you and your child today at Great Strides. Your newborn was wearing the same purple CF Fighter shirt my daughter was wearing. So many...

Water is inherent to our wellbeing as humans. Staying hydrated is especially important when you have a genetic condition that affects the way water and cells interact, like cystic fibrosis...

Getting sick is part of being human. It may be from a virus or a bacterium. But people get sick, and it can be hard to feed your body well...

Sometimes, I introspectively peak at my mangled innards and wonder how this all came to be? You manage one chronic illness your whole life? Sure, no problem. You get used...

Sometimes in cystic fibrosis (CF) you just happen to pull the short straw. It doesn't matter how compliant you are with daily treatment, or keeping a “CF healthy” diet. You...

When living with a chronic illness, I find my mind drifting into various stages, emotions and feelings. I often get comments from people, praising my strength and positivity, solely for...

I had a very interesting conversation with one of my CF nurses the other day just as we were preparing for the dreaded monthly port flush. As I mentally psyched...