Important Documents: Medical Power of AttorneyThis is Part 4 of the Important Documents series. The last article was about the Durable Power of Attorney. I explained what...reactionscomments
Practical Tips for Home IVs as a ParentAs more people with CF make the choice to start families, they’ll face the unique challenges of wearing two hats at once:...reactionscomments
CF Patients Have Care to GiveI never really considered myself to be a caregiver, not close in any capacity to how I view myself as a patient...reactionscomments
Important Documents: Durable Power of AttorneyDon't let the word attorney scare you. When you create a Durable Power of Attorney you don't have to be an attorney...reactionscomments
Transitioning from Pediatric to Adult CF CareAs an adolescent with cystic fibrosis (CF), I remember sensing a dark cloud over my impending transition from pediatric to adult CF...reactionscomments
Ring, Ring, Ring! Hello? It's Your CF Ears CallingHave you ever heard that curious folklore that says when your ears ring it means someone must be talking about you? I...reactionscomments
When Sleep Isn't Enough: CF Fatigue and Prescription StimulantsThere are seasons of CF life that are just downright tiring. Correction: beyond tiring. It's that feeling that no matter what you do...reactions3comments
Understanding Non-apparent Disabilities in the WorkplaceAbout 1 in 4 American adults live with a disability. Many people living with a disability are able to work and do...reactionscomments
When Smoke Wreaks HavocWhen we started Margo’s last week of kindergarten, I didn’t expect anything out of the ordinary to happen. I certainly didn’t expect...reactions2comments
What to Do after Job LossMore and more people with cystic fibrosis (CF) are working. In fact, there are more CF patients in employment than ever before...reactionscomments
Nutrition and Sickness: Importance of Meal PrepI previously wrote about loss of appetite and nausea. Getting adequate nutrition to help you heal as you battle an infection is...reactionscomments
The Hidden Mental Load of CF CareIn my opinion, the number one stressor for adults with CF is the silent mental load of CF care. The “BS of...reactions8comments
Helpful Hints for Long-Distance CaregivingBeing a caregiver can be rewarding but also draining. In many cases, caregivers and those they care for live nearby or even...reactionscomments
Measuring Lung Function with a CT ScanTests, tests, and more tests. Living with CF, it feels like you’re constantly scheduling and completing various testing to make sure you’re...reactions1comment
Manage Unwanted Trikafta Weight GainOne of the biggest challenges with Trikafta is that as our bodies become healthy, the excessive calories are no longer needed, so...reactionscomments
Stress LessContent warning: This article contains mention of thoughts of self-harm. I was involved in a study the past two weeks that involved...reactions4comments
Using My Treatment Time for GoodSeventy-five minutes a day lost. That is how I felt about my treatment time for most of my life. Yes, I would...reactionscomments
Morning RoutinesIn a previous article I wrote, I talked about how to get better sleep. Getting quality sleep can sometimes be difficult when...reactionscomments
How I Keep My Medication OrganizedSometimes the most useful guidance to help make a situation more efficient is the most obvious. We get so stuck in our...reactionscomments
Opioids for Cystic Fibrosis Pain: Benefits, Risks, and ConcernsResearch shows that more than 75 percent of adults with cystic fibrosis (CF) live with chronic pain. Many use prescription opioids to...reactions2comments
