Receiving My First Dose of the COVID-19 Vaccine with CFEvery Thursday, I tried to tune into Ohio’s Governor, Mike Dewine's press conference to the public about COVID-19 updates. Mostly, I was looking for hope of when I could expect...reactions1comment
All About My Partner's CF Carrier TestingCF genetic testing is an important step in both the diagnosis of CF as well as determining if someone carries the CF gene without actually having the disease. Many parents-to-be...reactionscomments
Out of NowhereI think you would probably agree with me when I say that being a caregiver to someone with CF is really just going through the motions. There is not much...reactions1comment
Five Favorite Pandemic Self-Care Activities for CFHow have you de-stressed this past year? The pandemic, political divide, disruption of routine doctor's visits, and isolation from friends and family has really highlighted the care my mental health...reactionscomments
Why Are My Hands So Wrinkly?Everyone has experienced hand and feet wrinkling at some point in their life. When we are young, we quickly learn that if we submerge our hands and feet in water...reactions10comments
Community Views: What People With Cystic Fibrosis Do Not Talk AboutSo much of the pain of cystic fibrosis is invisible. The diagnosis itself is not one that outsiders can visibly see, so conversations about cystic fibrosis are not often common...reactionscomments
Trying to Conceive with CF: My IUI ExperienceAfter our fertility testing was complete, we met with a Reproductive Endocrinologist to discuss the treatment plan and various success rates. I was a bit nervous as there are so...reactionscomments
Fibrosing Colonopathy in Cystic FibrosisCystic fibrosis (CF) can cause different complications in the body that may be mild to severe. They can also vary from person to person. Some of these complications affect the...reactionscomments
My WalkerIt all started a few years ago when I started having joint pains. It was as random as can be and I was very taken back by it. The pain...reactionscomments
Adjusting to ChangesIf you’re on medication, then you’ll recognize this feeling. You meet with your doctor and they suggest taking a new prescription or over-the-counter medicine, for either an issue that is...reactions2comments
Four Lifestyle Changes That Improved My CFHow many times have you heard the following advice: you should drink more water, eat lots of fruits and vegetables, and make sure to exercise? A bunch, right! Why? Because...reactionscomments
Iron Supplementation in CF - Part 1Anemia, or iron deficiency, is one of the most common nutritional deficiencies in the world. Furthermore, people with cystic fibrosis (CF) are at an increased risk of developing anemia: 10%...reactionscomments
Preparing My Advance Directive at 28I'm sitting in an exam room and the nurse asks me, "Do you happen to have an advance directive or power of attorney?" Suddenly, a wave of nerves comes over...reactionscomments
Parenting and FatigueBeing a parent is a tiring job, and often, life with a chronic illness often comes with fatigue. Both together can be a recipe for complete exhaustion and feelings of...reactionscomments
Nasal Polyp SurgeryNasal polyps are quite common in those of us with cystic fibrosis. It is not something I was even aware of because I had a late diagnosis. In my youth...reactions2comments
Eight Weirdly Unique Experiences of Having CFLiving with CF can be wildly unique, silly, uncomfortable, and frankly, bizarre at times. Being in the CF community feels like a world of its own with its own language...reactionscomments
Balancing a CF Diet and Toddler PickinessCystic fibrosis presents many daily physical, mental, and emotional challenges for patients and caregivers. As a CF caregiver, one of the most enduring challenges has been making sure my daughter...reactions1comment
10 Things That Are Essential for a Hospital AdmissionHaving just completed a 2-week stint in hospital for a lung tune-up, I wanted to share what I wouldn’t leave home without when prepping for a long stay. There are...reactionscomments
How To Practice Safe Medication DisposalToday more people are aware that old and unused drugs can be dangerous to keep around the house. Leftover drugs may be stolen and misused, look like candy to a...reactionscomments
Allowing Our Child to Experience NormalFinding out that your baby has CF is such a scary, unsettling time. Your mind goes to the one thing that you know you can control: The outside world. You...reactions2comments
