Trying to Conceive with CF: My IUI ExperienceAfter our fertility testing was complete, we met with a Reproductive Endocrinologist to discuss the treatment plan and various success rates. I was a bit nervous as there are so...Reactions0reactionsComments0 comments
Fibrosing Colonopathy in Cystic FibrosisCystic fibrosis (CF) can cause different complications in the body that may be mild to severe. They can also vary from person to person. Some of these complications affect the...Reactions0reactionsComments0 comments
My WalkerIt all started a few years ago when I started having joint pains. It was as random as can be and I was very taken back by it. The pain...Reactions0reactionsComments0 comments
Adjusting to ChangesIf you’re on medication, then you’ll recognize this feeling. You meet with your doctor and they suggest taking a new prescription or over-the-counter medicine, for either an issue that is...Reactions0reactionsComments2 comments
Four Lifestyle Changes That Improved My CFHow many times have you heard the following advice: you should drink more water, eat lots of fruits and vegetables, and make sure to exercise? A bunch, right! Why? Because...Reactions0reactionsComments0 comments
Iron Supplementation in CF - Part 1Anemia, or iron deficiency, is one of the most common nutritional deficiencies in the world. Furthermore, people with cystic fibrosis (CF) are at an increased risk of developing anemia: 10%...Reactions0reactionsComments0 comments
Preparing My Advance Directive at 28I'm sitting in an exam room and the nurse asks me, "Do you happen to have an advance directive or power of attorney?" Suddenly, a wave of nerves comes over...Reactions0reactionsComments0 comments
Parenting and FatigueBeing a parent is a tiring job, and often, life with a chronic illness often comes with fatigue. Both together can be a recipe for complete exhaustion and feelings of...Reactions0reactionsComments0 comments
Nasal Polyp SurgeryNasal polyps are quite common in those of us with cystic fibrosis. It is not something I was even aware of because I had a late diagnosis. In my youth...Reactions0reactionsComments2 comments
Eight Weirdly Unique Experiences of Having CFLiving with CF can be wildly unique, silly, uncomfortable, and frankly, bizarre at times. Being in the CF community feels like a world of its own with its own language...Reactions0reactionsComments0 comments
Balancing a CF Diet and Toddler PickinessCystic fibrosis presents many daily physical, mental, and emotional challenges for patients and caregivers. As a CF caregiver, one of the most enduring challenges has been making sure my daughter...Reactions0reactionsComments1 comments
10 Things That Are Essential for a Hospital AdmissionHaving just completed a 2-week stint in hospital for a lung tune-up, I wanted to share what I wouldn’t leave home without when prepping for a long stay. There are...Reactions0reactionsComments0 comments
How To Practice Safe Medication DisposalToday more people are aware that old and unused drugs can be dangerous to keep around the house. Leftover drugs may be stolen and misused, look like candy to a...Reactions0reactionsComments0 comments
Allowing Our Child to Experience NormalFinding out that your baby has CF is such a scary, unsettling time. Your mind goes to the one thing that you know you can control: The outside world. You...Reactions0reactionsComments2 comments
Managing CFRD With a Continuous Glucose MonitorBeing diagnosed with diabetes on top of cystic fibrosis can often be a disappointing and hard transition to process. Unfortunately, it happens to a lot of people living with CF...Reactions0reactionsComments0 comments
Tips for Parenting a Child With Cystic FibrosisParenting a child with cystic fibrosis is a big job, but it is not one you need to be overwhelmed by. The parents in our community have learned how to...Reactions0reactionsComments0 comments
What to Know Before Starting Your Treatment with TrikaftaThere has been a lot of talk about Trikafta over the past year. Many people have claimed that Trikafta has positively impacted their management of cystic fibrosis (CF). Our community...Reactions0reactionsComments1 comments
To Everyone's Surprise, COVID-19 Spared My LungsEvery time she coughed, a bit of anxiety would creep in my head. I began saying it aloud, “I think you have it, you should go get tested.” What if...Reactions0reactionsComments0 comments
What's the "CF Gender Gap"?In the CF community, there’s an unusual pattern seen in the life expectancy between men and women with CF. Men with CF tend to live longer than women with CF...Reactions0reactionsComments0 comments
Grateful for the COVID-19 VaccinationIt has been a particularly rough past year and now there is hope that can bring back some semblance of normalcy. The COVID-19 vaccine has come out and, with it...Reactions0reactionsComments0 comments