Making Connections in the CF CommunityWhen I first had my daughter, one of the things that truly made me feel energized was connecting with other new moms...reactions4comments
Pursuing IVF Treatment for Our InfertilityAs a result of Trikafta, there’s been a huge baby boom in the CF community among women. As much as I am...reactionscomments
Finding Credible Health InformationThere’s a lot of health information available on the internet these days. From personal blogs to online magazines to government websites and...reactions1comment
Is Cystic Fibrosis a Disability?Living with cystic fibrosis (CF) may make it harder to earn a living. Shortness of breath, the need for rest breaks, and...reactionscomments
Receiving My First Dose of the COVID-19 Vaccine with CFEvery Thursday, I tried to tune into Ohio’s Governor, Mike Dewine's press conference to the public about COVID-19 updates. Mostly, I was...reactions1comment
All About My Partner's CF Carrier TestingCF genetic testing is an important step in both the diagnosis of CF as well as determining if someone carries the CF...reactionscomments
Out of NowhereI think you would probably agree with me when I say that being a caregiver to someone with CF is really just...reactions1comment
Five Favorite Pandemic Self-Care Activities for CFHow have you de-stressed this past year? The pandemic, political divide, disruption of routine doctor's visits, and isolation from friends and family...reactionscomments
Why Are My Hands So Wrinkly?Everyone has experienced hand and feet wrinkling at some point in their life. When we are young, we quickly learn that if...reactions10comments
Community Views: What People With Cystic Fibrosis Do Not Talk AboutSo much of the pain of cystic fibrosis is invisible. The diagnosis itself is not one that outsiders can visibly see, so...reactionscomments
Trying to Conceive with CF: My IUI ExperienceAfter our fertility testing was complete, we met with a Reproductive Endocrinologist to discuss the treatment plan and various success rates. I...reactionscomments
Fibrosing Colonopathy in Cystic FibrosisCystic fibrosis (CF) can cause different complications in the body that may be mild to severe. They can also vary from person...reactionscomments
My WalkerIt all started a few years ago when I started having joint pains. It was as random as can be and I...reactionscomments
Adjusting to ChangesIf you’re on medication, then you’ll recognize this feeling. You meet with your doctor and they suggest taking a new prescription or...reactions2comments
Four Lifestyle Changes That Improved My CFHow many times have you heard the following advice: you should drink more water, eat lots of fruits and vegetables, and make...reactionscomments
Iron Supplementation in CF - Part 1Anemia, or iron deficiency, is one of the most common nutritional deficiencies in the world. Furthermore, people with cystic fibrosis (CF) are...reactionscomments
Preparing My Advance Directive at 28I'm sitting in an exam room and the nurse asks me, "Do you happen to have an advance directive or power of...reactionscomments
Parenting and FatigueBeing a parent is a tiring job, and often, life with a chronic illness often comes with fatigue. Both together can be...reactionscomments
Nasal Polyp SurgeryNasal polyps are quite common in those of us with cystic fibrosis. It is not something I was even aware of because...reactions2comments
Eight Weirdly Unique Experiences of Having CFLiving with CF can be wildly unique, silly, uncomfortable, and frankly, bizarre at times. Being in the CF community feels like a...reactionscomments
