Nasal Polyp SurgeryNasal polyps are quite common in those of us with cystic fibrosis. It is not something I was even aware of because I had a late diagnosis. In my youth... By Marieliz Landa2 min readBookmark for laterReactions 0 reactions Comments2 comments
Eight Weirdly Unique Experiences of Having CFLiving with CF can be wildly unique, silly, uncomfortable, and frankly, bizarre at times. Being in the CF community feels like a world of its own with its own language... By Janeil Whitworth2 min readBookmark for laterReactions 0 reactions Comments0 comments
Balancing a CF Diet and Toddler PickinessCystic fibrosis presents many daily physical, mental, and emotional challenges for patients and caregivers. As a CF caregiver, one of the most enduring challenges has been making sure my daughter... By Meagan Brackeen4 min readBookmark for laterReactions 0 reactions Comments1 comments
10 Things That Are Essential for a Hospital AdmissionHaving just completed a 2-week stint in hospital for a lung tune-up, I wanted to share what I wouldn’t leave home without when prepping for a long stay. There are... By Emma Boniface2 min readBookmark for laterReactions 0 reactions Comments0 comments
How To Practice Safe Medication DisposalToday more people are aware that old and unused drugs can be dangerous to keep around the house. Leftover drugs may be stolen and misused, look like candy to a... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments0 comments
Allowing Our Child to Experience NormalFinding out that your baby has CF is such a scary, unsettling time. Your mind goes to the one thing that you know you can control: The outside world. You... By Misty Roussa2 min readBookmark for laterReactions 0 reactions Comments2 comments
Managing CFRD With a Continuous Glucose MonitorBeing diagnosed with diabetes on top of cystic fibrosis can often be a disappointing and hard transition to process. Unfortunately, it happens to a lot of people living with CF... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Tips for Parenting a Child With Cystic FibrosisParenting a child with cystic fibrosis is a big job, but it is not one you need to be overwhelmed by. The parents in our community have learned how to... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
What to Know Before Starting Your Treatment with TrikaftaThere has been a lot of talk about Trikafta over the past year. Many people have claimed that Trikafta has positively impacted their management of cystic fibrosis (CF). Our community... By Canadian Pharmacist3 min readBookmark for laterReactions 0 reactions Comments1 comments
To Everyone's Surprise, COVID-19 Spared My LungsEvery time she coughed, a bit of anxiety would creep in my head. I began saying it aloud, “I think you have it, you should go get tested.” What if... By Ella Balasa5 min readBookmark for laterReactions 0 reactions Comments0 comments
What's the "CF Gender Gap"?In the CF community, there’s an unusual pattern seen in the life expectancy between men and women with CF. Men with CF tend to live longer than women with CF... By Janeil Whitworth2 min readBookmark for laterReactions 0 reactions Comments0 comments
Grateful for the COVID-19 VaccinationIt has been a particularly rough past year and now there is hope that can bring back some semblance of normalcy. The COVID-19 vaccine has come out and, with it... By Marieliz Landa2 min readBookmark for laterReactions 0 reactions Comments0 comments
Tips for Overcoming Hyponatremia Occasionally, people with cystic fibrosis (CF) can experience electrolyte imbalances. These electrolyte imbalances include hyponatremia, hypochloremia, hypokalemia, and metabolic alkalosis. Collectively, these are referred to as Pseudo-Bartter syndrome. The topic... By Canadian Pharmacist2 min readBookmark for laterReactions 0 reactions Comments1 comments
Community Thoughts on TrikaftaThere is no question about it: Trikafta has been a game-changer for the cystic fibrosis community. Since its approval by the U.S. Food and Drug Administration (FDA) in October 2019... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments1 comments
CF Milestones: Celebrating Achievements and Managing ExpectationsIn addition to all the milestones one faces with their child, the treatment and management of cystic fibrosis includes pivotal moments for patients. While they may not be the traditional... By Meagan Brackeen4 min readBookmark for laterReactions 0 reactions Comments1 comments
Do You Smell That? CF and Loss of SmellThere are so many wonderful (and gag-worthy) smells we experience in our day-to-day lives. Freshly baked cookies, a bouquet of roses, sunscreen on the beach, or a newly cut Christmas... By Janeil Whitworth2 min readBookmark for laterReactions 0 reactions Comments1 comments
Loving Your Care CenterOur first visit to our care center, like most parents of a child with cystic fibrosis, was not pleasant. I vaguely remember the walk from the parking garage to the... By Misty Roussa2 min readBookmark for laterReactions 0 reactions Comments1 comments
How Can Cystic Fibrosis Affect the Teeth?It might surprise you to know that people with cystic fibrosis (CF) generally have fewer cavities and cases of gum disease than people without CF. This is especially notable because... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments2 comments
Dealing With Trikafta AcneIncreased lung function? Check! Healthy weight gain? Check! Painful, cystic acne? Um...check! Improvements in the CF community since the release of Trikafta have been astonishing. People are living healthier lives... By Janeil Whitworth2 min readBookmark for laterReactions 0 reactions Comments2 comments
Wintery Butternut Squash SoupThis soup is absolutely PERFECT during the wintery/cold days. Add some delicious croutons, some crème fraiche, or top with some toasted pumpkin seeds to make this dish pop! This dish... By Andrew LoebachBookmark for laterReactions 0 reactions Comments0 comments