Managing CFRD With a Continuous Glucose MonitorBeing diagnosed with diabetes on top of cystic fibrosis can often be a disappointing and hard transition to process. Unfortunately, it happens to a lot of people living with CF...reactionscomments
Tips for Parenting a Child With Cystic FibrosisParenting a child with cystic fibrosis is a big job, but it is not one you need to be overwhelmed by. The parents in our community have learned how to...reactionscomments
What to Know Before Starting Your Treatment with TrikaftaThere has been a lot of talk about Trikafta over the past year. Many people have claimed that Trikafta has positively impacted their management of cystic fibrosis (CF). Our community...reactions1comment
To Everyone's Surprise, COVID-19 Spared My LungsEvery time she coughed, a bit of anxiety would creep in my head. I began saying it aloud, “I think you have it, you should go get tested.” What if...reactionscomments
What's the "CF Gender Gap"?In the CF community, there’s an unusual pattern seen in the life expectancy between men and women with CF. Men with CF tend to live longer than women with CF...reactionscomments
Grateful for the COVID-19 VaccinationIt has been a particularly rough past year and now there is hope that can bring back some semblance of normalcy. The COVID-19 vaccine has come out and, with it...reactionscomments
Tips for Overcoming Hyponatremia Occasionally, people with cystic fibrosis (CF) can experience electrolyte imbalances. These electrolyte imbalances include hyponatremia, hypochloremia, hypokalemia, and metabolic alkalosis. Collectively, these are referred to as Pseudo-Bartter syndrome. The topic...reactions1comment
Community Thoughts on TrikaftaThere is no question about it: Trikafta has been a game-changer for the cystic fibrosis community. Since its approval by the U.S. Food and Drug Administration (FDA) in October 2019...reactions1comment
CF Milestones: Celebrating Achievements and Managing ExpectationsIn addition to all the milestones one faces with their child, the treatment and management of cystic fibrosis includes pivotal moments for patients. While they may not be the traditional...reactions1comment
Do You Smell That? CF and Loss of SmellThere are so many wonderful (and gag-worthy) smells we experience in our day-to-day lives. Freshly baked cookies, a bouquet of roses, sunscreen on the beach, or a newly cut Christmas...reactions1comment
Loving Your Care CenterOur first visit to our care center, like most parents of a child with cystic fibrosis, was not pleasant. I vaguely remember the walk from the parking garage to the...reactions1comment
How Can Cystic Fibrosis Affect the Teeth?It might surprise you to know that people with cystic fibrosis (CF) generally have fewer cavities and cases of gum disease than people without CF. This is especially notable because...reactions2comments
Dealing With Trikafta AcneIncreased lung function? Check! Healthy weight gain? Check! Painful, cystic acne? Um...check! Improvements in the CF community since the release of Trikafta have been astonishing. People are living healthier lives...reactions2comments
Wintery Butternut Squash SoupThis soup is absolutely PERFECT during the wintery/cold days. Add some delicious croutons, some crème fraiche, or top with some toasted pumpkin seeds to make this dish pop! This dish...reactionscomments
Invisible DisabilityLiving with cystic fibrosis is living with a disease no one will really realize you have unless they know the details of your day-to-day life. Cystic fibrosis is an invisible...reactionscomments
Understanding and Coping with CF BellyWhen we have a gut flare-up, many dieticians feel our digestive enzymes are the culprit. Adjustment to quantities, missed doses, inadequate amounts, and so on. I found it extremely challenging...reactionscomments
Our Son Can Not Have ChildrenIt was after our son's second hernia repair surgery that it was confirmed. The nurse came out to the waiting area (not good) and requested to speak with the parents...reactionscomments
Kidney Stones and Cystic FibrosisAnyone who has had a kidney stone can tell you that it was one of the most painful events of their life. Nephrolithiasis is the process of forming a kidney...reactionscomments
Our Cleaning And Sanitizing RegimenBefore having a child with cystic fibrosis, I never realized how much attention towards cleaning and sanitization is necessary to keep patients healthy and safe. COVID-19 has normalized hand sanitizing...reactionscomments
Hearty Cheese Tortellini SoupIt’s winter here in Ohio, and that means it’s time for soup! All the soup! Soup is one of my favorite dishes to make for dinner (and eat as leftovers...reactions2comments
