Balancing a CF Diet and Toddler PickinessCystic fibrosis presents many daily physical, mental, and emotional challenges for patients and caregivers. As a CF caregiver, one of the most...reactions1comment
10 Things That Are Essential for a Hospital AdmissionHaving just completed a 2-week stint in hospital for a lung tune-up, I wanted to share what I wouldn’t leave home without...reactionscomments
How To Practice Safe Medication DisposalToday more people are aware that old and unused drugs can be dangerous to keep around the house. Leftover drugs may be...reactionscomments
Allowing Our Child to Experience NormalFinding out that your baby has CF is such a scary, unsettling time. Your mind goes to the one thing that you...reactions2comments
Managing CFRD With a Continuous Glucose MonitorBeing diagnosed with diabetes on top of cystic fibrosis can often be a disappointing and hard transition to process. Unfortunately, it happens...reactionscomments
Tips for Parenting a Child With Cystic FibrosisParenting a child with cystic fibrosis is a big job, but it is not one you need to be overwhelmed by. The...reactionscomments
What to Know Before Starting Your Treatment with TrikaftaThere has been a lot of talk about Trikafta over the past year. Many people have claimed that Trikafta has positively impacted...reactions1comment
To Everyone's Surprise, COVID-19 Spared My LungsEvery time she coughed, a bit of anxiety would creep in my head. I began saying it aloud, “I think you have...reactionscomments
What's the "CF Gender Gap"?In the CF community, there’s an unusual pattern seen in the life expectancy between men and women with CF. Men with CF...reactionscomments
Grateful for the COVID-19 VaccinationIt has been a particularly rough past year and now there is hope that can bring back some semblance of normalcy. The...reactionscomments
Tips for Overcoming Hyponatremia Occasionally, people with cystic fibrosis (CF) can experience electrolyte imbalances. These electrolyte imbalances include hyponatremia, hypochloremia, hypokalemia, and metabolic alkalosis. Collectively, these...reactions1comment
Community Thoughts on TrikaftaThere is no question about it: Trikafta has been a game-changer for the cystic fibrosis community. Since its approval by the U.S...reactions1comment
CF Milestones: Celebrating Achievements and Managing ExpectationsIn addition to all the milestones one faces with their child, the treatment and management of cystic fibrosis includes pivotal moments for...reactions1comment
Do You Smell That? CF and Loss of SmellThere are so many wonderful (and gag-worthy) smells we experience in our day-to-day lives. Freshly baked cookies, a bouquet of roses, sunscreen...reactions1comment
Loving Your Care CenterOur first visit to our care center, like most parents of a child with cystic fibrosis, was not pleasant. I vaguely remember...reactions1comment
How Can Cystic Fibrosis Affect the Teeth?It might surprise you to know that people with cystic fibrosis (CF) generally have fewer cavities and cases of gum disease than...reactions2comments
Dealing With Trikafta AcneIncreased lung function? Check! Healthy weight gain? Check! Painful, cystic acne? Um...check! Improvements in the CF community since the release of Trikafta...reactions2comments
Wintery Butternut Squash SoupThis soup is absolutely PERFECT during the wintery/cold days. Add some delicious croutons, some crème fraiche, or top with some toasted pumpkin...reactionscomments
Invisible DisabilityLiving with cystic fibrosis is living with a disease no one will really realize you have unless they know the details of...reactionscomments
Understanding and Coping with CF BellyWhen we have a gut flare-up, many dieticians feel our digestive enzymes are the culprit. Adjustment to quantities, missed doses, inadequate amounts...reactionscomments
