Wintery Butternut Squash SoupThis soup is absolutely PERFECT during the wintery/cold days. Add some delicious croutons, some crème fraiche, or top with some toasted pumpkin seeds to make this dish pop! This dish... By Andrew LoebachBookmark for laterReactions 0 reactions Comments0 comments
Invisible DisabilityLiving with cystic fibrosis is living with a disease no one will really realize you have unless they know the details of your day-to-day life. Cystic fibrosis is an invisible... By Marieliz Landa2 min readBookmark for laterReactions 0 reactions Comments0 comments
Understanding and Coping with CF BellyWhen we have a gut flare-up, many dieticians feel our digestive enzymes are the culprit. Adjustment to quantities, missed doses, inadequate amounts, and so on. I found it extremely challenging... By Emma Boniface2 min readBookmark for laterReactions 0 reactions Comments0 comments
Our Son Can Not Have ChildrenIt was after our son's second hernia repair surgery that it was confirmed. The nurse came out to the waiting area (not good) and requested to speak with the parents... By Misty Roussa3 min readBookmark for laterReactions 0 reactions Comments0 comments
Kidney Stones and Cystic FibrosisAnyone who has had a kidney stone can tell you that it was one of the most painful events of their life. Nephrolithiasis is the process of forming a kidney... By Canadian Pharmacist2 min readBookmark for laterReactions 0 reactions Comments0 comments
Our Cleaning And Sanitizing RegimenBefore having a child with cystic fibrosis, I never realized how much attention towards cleaning and sanitization is necessary to keep patients healthy and safe. COVID-19 has normalized hand sanitizing... By Meagan Brackeen3 min readBookmark for laterReactions 0 reactions Comments0 comments
Hearty Cheese Tortellini SoupIt’s winter here in Ohio, and that means it’s time for soup! All the soup! Soup is one of my favorite dishes to make for dinner (and eat as leftovers... By Janeil WhitworthBookmark for laterReactions 0 reactions Comments2 comments
5 Things I Have Learned Living With Cystic FibrosisThe hardest thing about having CF is the invisibility. We look like the picture of health – like we should be full to the brim with endless energy. It is... By Emma Boniface3 min readBookmark for laterReactions 0 reactions Comments0 comments
Nine Ways To Make CF Care Easier And More FunCystic fibrosis care is overwhelming, monotonous, and exhausting most of the time. Often taking care of myself feels like a vicious, neverending cycle of the same routine over and over... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Incorporating High Calorie Supplements Into Your Diet While Minimizing SugarsStruggling with weight gain throughout my lifetime has required daily attention to making sure I am consuming enough calories just to maintain my weight. For many years, really ever since... By Ella Balasa2 min readBookmark for laterReactions 0 reactions Comments0 comments
COVID-19 Vaccines For People With Lung ConditionsPeople living with cystic fibrosis face a higher chance of serious illness from the virus that causes COVID-19. Having other long-term lung diseases like COPD and moderate-to-severe asthma may also... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
Quick Guide To Applying For Disability With CFApplying for Social Security Disability can be a daunting and overwhelming process for adults living with cystic fibrosis (CF) who are unable to work because of their health status. If... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments2 comments
Does Ethnicity Impact Access To CF Treatment?It is no surprise that disparities in health care access have been present since the establishment of a health system. While these disparities are recognized, many reports continue to highlight... By Canadian Pharmacist2 min readBookmark for laterReactions 0 reactions Comments0 comments
Myths & Facts About Living WillsA living will is known by several other names, including advanced directive, healthcare declaration, medical directive, and many more. There is often confusion about what these words mean and why... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Interview With Julia RaeMost people in the cystic fibrosis community have heard of Julia Rae. Julia Rae is a singer, songwriter, actor, model, and a CFer who is a patient advocate for the... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
What I Want The Anti-Maskers To KnowImagine you could have a place in preventing a tragic incident from occurring. Think about how wonderful it could be if you could prevent a mother from losing her child... By Misty Roussa2 min readBookmark for laterReactions 0 reactions Comments0 comments
Understanding My Experiences with CFNot too long ago, during one of my regular face time calls with my mom, I was explaining to her how frustrated I was with the setbacks that living with... By Katelyn Harlow4 min readBookmark for laterReactions 0 reactions Comments0 comments
Intussusception Saved My Life: CF Diagnosis StoryAround two-thirds of people living with CF are diagnosed before the age of 2. However, that’s not how my CF diagnosis story plays out at all. My diagnosis story is... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Things Not To Say To Someone With CFIt seems that many people with CF know someone who hasn't learned the rule: “If you cannot say anything nice, do not say anything at all.” Some people feel free... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
How CF Has Affected Our Family Dynamic It is a challenge for me to remember two things: what life was like before being a parent, and what life was like before cystic fibrosis. In many ways, they... By Meagan Brackeen3 min readBookmark for laterReactions 0 reactions Comments0 comments