Tips for Overcoming Hyponatremia Occasionally, people with cystic fibrosis (CF) can experience electrolyte imbalances. These electrolyte imbalances include hyponatremia, hypochloremia, hypokalemia, and metabolic alkalosis. Collectively, these are referred to as Pseudo-Bartter syndrome. The topic...Reactions0reactionsComments1 comments
Community Thoughts on TrikaftaThere is no question about it: Trikafta has been a game-changer for the cystic fibrosis community. Since its approval by the U.S. Food and Drug Administration (FDA) in October 2019...Reactions0reactionsComments1 comments
CF Milestones: Celebrating Achievements and Managing ExpectationsIn addition to all the milestones one faces with their child, the treatment and management of cystic fibrosis includes pivotal moments for patients. While they may not be the traditional...Reactions0reactionsComments1 comments
Do You Smell That? CF and Loss of SmellThere are so many wonderful (and gag-worthy) smells we experience in our day-to-day lives. Freshly baked cookies, a bouquet of roses, sunscreen on the beach, or a newly cut Christmas...Reactions0reactionsComments1 comments
Loving Your Care CenterOur first visit to our care center, like most parents of a child with cystic fibrosis, was not pleasant. I vaguely remember the walk from the parking garage to the...Reactions0reactionsComments1 comments
How Can Cystic Fibrosis Affect the Teeth?It might surprise you to know that people with cystic fibrosis (CF) generally have fewer cavities and cases of gum disease than people without CF. This is especially notable because...Reactions0reactionsComments2 comments
Dealing With Trikafta AcneIncreased lung function? Check! Healthy weight gain? Check! Painful, cystic acne? Um...check! Improvements in the CF community since the release of Trikafta have been astonishing. People are living healthier lives...Reactions0reactionsComments2 comments
Wintery Butternut Squash SoupThis soup is absolutely PERFECT during the wintery/cold days. Add some delicious croutons, some crème fraiche, or top with some toasted pumpkin seeds to make this dish pop! This dish...Reactions0reactionsComments0 comments
Invisible DisabilityLiving with cystic fibrosis is living with a disease no one will really realize you have unless they know the details of your day-to-day life. Cystic fibrosis is an invisible...Reactions0reactionsComments0 comments
Understanding and Coping with CF BellyWhen we have a gut flare-up, many dieticians feel our digestive enzymes are the culprit. Adjustment to quantities, missed doses, inadequate amounts, and so on. I found it extremely challenging...Reactions0reactionsComments0 comments
Our Son Can Not Have ChildrenIt was after our son's second hernia repair surgery that it was confirmed. The nurse came out to the waiting area (not good) and requested to speak with the parents...Reactions0reactionsComments0 comments
Kidney Stones and Cystic FibrosisAnyone who has had a kidney stone can tell you that it was one of the most painful events of their life. Nephrolithiasis is the process of forming a kidney...Reactions0reactionsComments0 comments
Our Cleaning And Sanitizing RegimenBefore having a child with cystic fibrosis, I never realized how much attention towards cleaning and sanitization is necessary to keep patients healthy and safe. COVID-19 has normalized hand sanitizing...Reactions0reactionsComments0 comments
Hearty Cheese Tortellini SoupIt’s winter here in Ohio, and that means it’s time for soup! All the soup! Soup is one of my favorite dishes to make for dinner (and eat as leftovers...Reactions0reactionsComments2 comments
5 Things I Have Learned Living With Cystic FibrosisThe hardest thing about having CF is the invisibility. We look like the picture of health – like we should be full to the brim with endless energy. It is...Reactions0reactionsComments0 comments
Nine Ways To Make CF Care Easier And More FunCystic fibrosis care is overwhelming, monotonous, and exhausting most of the time. Often taking care of myself feels like a vicious, neverending cycle of the same routine over and over...Reactions0reactionsComments0 comments
Incorporating High Calorie Supplements Into Your Diet While Minimizing SugarsStruggling with weight gain throughout my lifetime has required daily attention to making sure I am consuming enough calories just to maintain my weight. For many years, really ever since...Reactions0reactionsComments0 comments
COVID-19 Vaccines For People With Lung ConditionsPeople living with cystic fibrosis face a higher chance of serious illness from the virus that causes COVID-19. Having other long-term lung diseases like COPD and moderate-to-severe asthma may also...Reactions0reactionsComments0 comments
Quick Guide To Applying For Disability With CFApplying for Social Security Disability can be a daunting and overwhelming process for adults living with cystic fibrosis (CF) who are unable to work because of their health status. If...Reactions0reactionsComments2 comments
Does Ethnicity Impact Access To CF Treatment?It is no surprise that disparities in health care access have been present since the establishment of a health system. While these disparities are recognized, many reports continue to highlight...Reactions0reactionsComments0 comments
