Daily Routine as a Pregnant Preschool Mom with CFOur lives are a little crazy at the moment as I try to balance my CF, caring for our preschool son, and...reactionscomments
If There Was One Thing I Could Change about HealthcareIn my health journey, I have experienced times when doctors have treated me as though I don’t understand enough about my disease...reactionscomments
Interview with Emily Lyons, CF Advocate and EntrepreneurEmily is the founder and CEO of North America's top event staffing, the multi-award-winning Femme Fatale Media Group. Emily has gone on...reactionscomments
Emotional Support AnimalI have often seen service animals and I’m sure you have too. For example, you may see them in the mall or...reactions2comments
To Everyone's Surprise, COVID-19 Spared My LungsEvery time she coughed, a bit of anxiety would creep in my head. I began saying it aloud, “I think you have...reactionscomments
COVID-19 Updates, June 15: Solidarity Hydroxychloroquine Trials and COVID Vaccine DevelopmentMany of us are overwhelmed by the amount of information available on COVID-19. Keeping up with all of the news can be...reactionscomments
Voting With A Health Condition: What To KnowVoting is a fundamental American right, but it has special meaning for people with disabilities or health conditions. Until federal laws like...reactionscomments
The (Virtual) Doctor Is In! Sharing Telehealth ExperiencesAs the COVID-19 pandemic continues, telehealth is being used by more and more people. Telehealth is also sometimes called telemedicine or virtual...reactionscomments
Coronavirus: Be Calm And AwareThe coronavirus has been on the news more times than I can count and it’s inducing a wave of panic across the...reactionscomments
Understanding My Experiences with CFNot too long ago, during one of my regular face time calls with my mom, I was explaining to her how frustrated...reactionscomments
Five Favorite Pandemic Self-Care Activities for CFHow have you de-stressed this past year? The pandemic, political divide, disruption of routine doctor's visits, and isolation from friends and family...reactionscomments
COVID-19 Vaccines For People With Lung ConditionsPeople living with cystic fibrosis face a higher chance of serious illness from the virus that causes COVID-19. Having other long-term lung...reactionscomments
The Challenges And Perks To My Weight GainAll my life I struggled to keep my weight in a healthy range. I was always underweight and the smallest in my...reactionscomments
Nasal Pressure Headaches/MigrainesNasal pressure from blocked nasal passages is bad enough but the accompanying headache increases it to terrible. In my case, my sinuses...reactions3comments
How Can a Gastroenterologist Treat People with Cystic Fibrosis?When most people think of cystic fibrosis (CF), they think of difficulty breathing and clogged lungs. And they are not wrong. People...reactions4comments
Know Your MucusIf there is one thing us patients with cystic fibrosis have in common, it's mucus! While it is a gross topic and...reactionscomments
Precautions for Going Back to School this FallSchool is starting soon (too soon!!) and despite most state's Covid numbers, students in many areas will not have the option of...reactionscomments
Wide Awake: How CF Affects Sleep Sleep disturbances are extremely common in the general population, and can vary in their level of effect on quality of life. Insomnia...reactionscomments
How to Grow in Your AdvocacyMany of us in the CF community are well connected on social media and often share our personal experiences battling our illness...reactions1comment
How Can CF Affect Oral Health?It’s been ingrained into us since early childhood and the days of blue bubblegum toothpaste how important it is to take care...reactionscomments
